News
25/03/13 - Statement by Leeds Teaching Hospitals NHS Trust – Paediatric Cardiac Surgeon
We received this afternoon a statement from Leeds Children’s Hospital which we have reproduced in full below. CHF notes that there are concerns about the treatment of patients with congenital heart disease and that the Trust is taking action. The Trust has asked us to make clear, that this action is not about adverse mortality or morbidity figures, however we have […]
11/03/13 - April 10th 2013 – Day out at London’s o2 Arena
Are you aged 13-17? Join us for fun at London’s famous O2 arena with the British Music Experience and a delicious lunch. Meet other teenagers with heart conditions, and hang out with our friendly team. This event is open to siblings and friends as well. We’d love you to join us, if you’re interested complete […]
07/03/13 - Safe & Sustainable – CHF Comment re: Judicial Review Judgement 7/3/2013
We are disappointed that this decision will result in further delays to the establishment of the new children’s heart care network, adding to the considerable anxiety that some families of children with a heart problem have been living under for many months now. Uncertainty about the final configuration of surgical and cardiology centres is now […]
27/02/13 - Worcester Standard – Mum’s plea for screening tests on newborns
A MUM of two whose daughter is facing open heart surgery has urged health chiefs to introduce a potentially life-saving screening test on all newborn babies. Joanna Dobson, from Warndon Villages, is pushing for the Pulse Oximetry test – which measures oxygen levels in the blood – to become a standard procedure in delivery suites […]
25/02/13 - Heart News February 2013
Download the latest issue of Heart News for February 2013 here
19/02/13 - Medical News Today – MPs, clinicians and patients are uniting to drive change for patients on long-term warfarin
A simple self-monitoring test could reduce the risk of stroke by half in thousands of people who currently take warfarin to prevent blood clots. Better access to self-monitoring of international normalized ratio (INR) levels, which measures how long it takes blood to form a clot, could also lower mortality rates by nearly two fifths,[1] reduce the number of complications […]
15/02/13 - Research Request – Parents wanted to help design medical research
Are you a parent or carer of a child with a long-term medical condition or disability who has recently been ill with flu? Would you like to help design medical research? If your child: Is aged 6 months to 12 years Has recently been ill with a flu-like illness Has a long-term health […]
13/02/13 - The Yorkshire Times – “Give Vital Screening Test To All Babies” Says Children’s Heart Charity
Pulse Oximetry is a test carried out using a small device which measures the oxygen levels in the blood. Currently some mothers receive this test after childbirth, but their children do not necessarily receive the test as well. This is despite an overwhelming amount of evidence which points to the possible benefits of doing the […]
12/02/13 - Virendra Sharma MP -I support the AntiCoagulation Self-Monitoring Alliance (ACSMA) campaign
I give my full support and commitment to continue with supporting the AntiCoagulation Self-Monitoring Alliance (ACSMA) campaign, to increase access to self-monitoring via prescription for patients on long-term warfarin. I believe if patients are able to choose self-monitoring, then this would contribute in improving the quality of their care. ACSMA comprises four of the UK’s leading […]
11/02/13 - Mature News – Simple home test can halve the risk of stroke and cut the risk of death for thousands of patients on warfarin therapy
MPs, clinicians and patients are uniting to drive change for patients on long-term warfarin A simple self-monitoring test could reduce the risk of stroke by half in thousands of people who currently take warfarin to prevent blood clots. Better access to self-monitoring of international normalized ratio (INR) levels, which measures how long it takes blood […]
