CHF are focusing ahead to World Down Syndrome Day that will take place this year on:
Monday 21 March 2016
And we reflect on the significant start to 2016 where insights into the genetic basis for Down Syndrome and it’s associated heart defects were further discerned through the collaborative research of Prof Victor Tybulewicz of the Francis Crick Institute and Imperial College London and Prof Elizabeth Fisher of University College London.
To read the full research paper:
CHF also encourage all newly diagnosed parents of our inspiring Down’s children to make contact with CHF’s member group: Down’s Heart Group.
The Down’s Heart Group provide exemplary support and personalised Information Packs as well as parent-to-parent contact and welcome all calls to their telephone helpline: 0300 102 1644.
The Group benefits from the knowledge of several medical experts who provide ongoing advice, as well as close links with major cardiac units, heart groups and Down Syndrome organisations. All of this places them in an ideal position to represent families and campaign for service changes where needed.
Further information about Down’s Heart Group:
And please don’t forget to order your T-Shirt to celebrate World Down Syndrome Day on Monday 21 March!
Down’s Heart Group and Positive Choices have teamed up to raise awareness and promote true inclusion of our inspiring Down’s children!
To purchase a T-shirt please see link below:
CHF would love to hear how you will mark World Down Syndrome Day!
Please post via Facebook at: www.facebook.com/chfed.