News
19/05/17 - Faulty defibrillator: users urged to check battery connection
People and organisations should check public access defibrillators for a technical fault, the Medicines and Healthcare products Regulatory Agency advised today. People and organisations should check if they have the defibrillator model, LIFEPAK 1000 Automatic External Defibrillators (AED), because a technical fault with some of them means they may not deliver an electric shock to […]
15/05/17 - Cardiac Staff Teams at Specialist Centres
Did you know the Children’s Heart Federation (CHF) has a page on our website listing paediatric cardiologists, paediatric surgeons and cardiac liaison nurses at heart units through England and Wales where heart surgery is performed on children. It has not been an easy task to put this list together so if you know of any […]
10/05/17 - Resilience and congenital heart disease (CHD)
Congenital heart disease (CHD) resilience comes in many shapes and forms. Talking, reading and sharing information about it are the elements that hold it together. CHF’s Molly’s dollies choose: ‘Rosie goes red, Violet goes blue’ as their CHF book and narrative to share this important information. Would you like to introduce this CHD book to […]
04/05/17 - CHF’s Heart2Heart: Your CHD e-newsletter
A new month and a new look Heart2Heart e-newsletter! Read and share – we’d love to receive your feedback! Email us at: info@chfed.org.uk or via Facebook www.facebook.com/chfed Or Twitter @chfed Let’s make 2017 the most shared in the congenital heart disease (CHD) family! Further information: http://ymlp.com/zPUdBW
28/04/17 - CHD Consultation
Please note that the congenital heart disease (CHD) consultation by NHS England will now progress until: 17 July 2017 Further information: https://www.england.nhs.uk/blog/extending-the-congenital-heart-disease-consultation/
27/04/17 - Talking about CHD
Sharing information about disability with your heart child and siblings may be a positive way of growing in emotional resilience for each heart family and friends on their congenital heart disease (CHD) journey together. CHF’s Molly’s dollies offer a gentle and secure way of talking about the subject of CHD heart surgery scars and some […]
04/04/17 - Public Health England e-learning screening education
Public Health England has opened a new e-learning platform on screening information and education. All who would like to learn more about PHE screening are invited to register for this innovative new e-learning website. PHE Screening leads the national population screening programmes, which are delivered by the NHS. These identify apparently healthy people who may […]
03/04/17 - Daventry to Paris cycle ride
Good luck to Ruth Tomlin cycling from Daventry to Paris on 20th July to raise funds for CHF. https://www.justgiving.com/fundraising/Helen-tomlin1
29/03/17 - Workshop for parents – supporting siblings of disabled children
Parents in East London may be interested in this workshop run by Sibs a UK charity that supports people who grow up with or have grown up with a disabled brother or sister. This workshop will help parents of disabled children find ways of giving attention, information, and support to the other children in their […]
Mar 27th 2017 - Sign for life 2017
The Children’s Heart Federation supports the sign for life 2017 campaign. Read the story of Rhys an 11 year old who suffered from cardiomyopathy who received a heart transplant. Find out more about how organ donation can help save lives. Register here and remember to share your decision with your relatives.
