News
10/10/18 - CHF focus on World Mental Health Day
On this World Mental Health Day CHF focus on research addressing parents’ experiences of caring for their child at the time of discharge after cardiac surgery and during the post-discharge period. CHF was part of this study and moderated the closed forum for discussion on our Facebook page. Further information: https://www.jmir.org/2018/5/e155/
08/10/18 - Baby Loss Awareness Week 09–15 October
If you’ve been affected by the loss of a baby, please know there are several groups ready to support you. With full understanding. Pregnancy and baby loss is often a taboo subject. You can help break the silence around baby loss by talking to your friends and family about Baby Loss Awareness Week and by […]
02/10/18 - Publication of a technical notice for organs, tissues and cells
The Human Tissue Authority has noted that the Government has published a Technical Notice providing information on how tissues, cells and organs for transplantation can continue to pass between EU Member States and the UK following the UK’s withdrawal from the EU in the event of a no-deal scenario. The purpose of this notice is […]
01/10/18 - How grandparents help the CHD family
1st October is the International Day of Older Persons and CHF focus on the unique support that grandparents share with their children and grandchildren. CHF’s information sheet ‘Being a grandparent to a heart child’ offers insight and resources to grandparents who find themselves dealing with the diagnosis that their grandchild has a heart condition. Find […]
28/09/18 - My heart, my stories: A CHD blog with a difference
Written by Molly Meehan – the inspirational teenager born with a heart condition and CHF’s inspiration behind each CHF Molly’s dolly – ‘My heart, my stories’ blog explores the congenital heart disease (CHD) journey with honesty and a massive amount of insight. This World Heart Day 2018, CHF are focusing on how children and young […]
26/09/18 - CHD: The importance of avoiding infections
Dental hygiene and avoiding body piercings which introduce infections are very important with managing congenital heart disease (CHD). CHF’s information sheet on infective endocarditis is a first step to find out more and it’s great to know that our resource is mentioned on the Paediatricians with Expertise in Cardiology Special Interest Group (PECSIG) website. Further […]
17/09/18 - 32nd Paediatric Intensive Care Conference
All members of the Paediatric Intensive Care Unit (PICU) team are invited to attend the 32nd Paediatric Intensive Care Conference which will take place on 19 – 21 September 2018 at the Royal Bristol Children’s Hospital. This event will examine best clinical practice including how developments in technological progress may impact the clinical narrative. Further […]
10/09/18 - Post-operative pain & comfort in children after heart surgery
Differences exist between parents’ and medical personnel’s definitions of pain and discomfort. An international research study is addressing this subject and focusing on childrens’ pain control after heart surgery. Further information: https://bit.ly/2oVTPA1
03/09/18 - Words Save Lives: Organ Donation Week 2018
This Organ Donation Week 03 – 09 September 2018, let’s revisit our conversations about organ donation. Mum, Lisa Mallett shared the message below for the family who chose to give their child’s heart as a heart donor to save Lisa’s daughter Esme’s life: ‘Even if I had all the time in the world and all […]
29/08/18 - Organ Donation Awareness Week 2018
Family support is needed for an organ donation to take place. This year’s Organ Donation Awareness Week takes place from 03 – 09 September 2018 Its core theme is: Words Save Lives. Let’s speak with our families to clarify our wishes. Words save lives. Actions complete them. Further information: https://bit.ly/2PNYPTj
