News
06/07/18 - Young adults with congenital heart disease and driving
Did you know that you must tell the Driver and Vehicle Licensing Agency (DVLA) if you have congenital heart disease and have symptoms that affect safe driving? Further information: https://www.gov.uk/congenital-heart-disease-and-driving
02/07/18 - Let’s hear it for CHF’s fundraising stars!
Your fantastic efforts and support of CHF’s work is helping CHF provide more congenital heart disease (CHD) resources for heart children and their families as well as raising much needed congenital heart disease awareness to new communities. New month, new week, same outstanding motivation. Further information: https://www.chfed.org.uk/category/fundraising-stars/
25/06/18 - International research and Fontan patients
An international research study asks: Can endurance training improve physical capacity and quality of life in young Fontan patients? Further information: https://bit.ly/2ynrz0F
18/06/18 - Help develop the NICE guideline on atrial fibrillation
The National Institute for Health and Care Excellence (NICE) are inviting lay members to join their atrial fibrillation guideline committee. This is an 18 month commitment and will ensure your views of atrial fibrillation are fully taken on board through experiences gained either as a patient or as an advocate for a loved one diagnosed […]
11/06/18 - Your story. Your voice.
CHF has received a media request for health stories ahead of the 70th anniversary of the National Health Service. This project aims to capture people’s memories of the NHS via a voicemail platform with a selection of audio recordings being published with permission via print and online. You’re invited to call up and record experiences […]
31/05/18 - Help with travel costs to hospital
Are you aware that you could receive help with the cost of travel to hospital if you have a low income? The NHS Low Income Scheme could help with the cost of travelling to receive NHS treatment. Further information: https://www.nhsbsa.nhs.uk/nhs-low-income-scheme
Apr 26th 2018 - 11th May Write to your MP about pulse oximetry testing
CHF has been campaigning for the introduction of Pulse Oximetry screening for all newborn babies in the UK since 2015. The test – measuring the oxygen levels in the blood – is proven to be effective in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its inclusion in the […]
23/04/18 - Experience of Care Week 2018
Experienced excellent care at your heart child’s hospital appointments? Why not share your feedback on great care or suggest what could have worked better? Experience of Care Week takes place on 23 – 27 April and addresses what is happening across health and social care to improve experiences of care for patients, carers and staff. […]
16/04/18 - Nutrition and congenital heart disease (CHD)
CHF are focusing on nutrition and support for children with congenital heart disease (CHD). Our campaigns page is hosting recipes from parents sharing their insights and recipes. And our Heart2Heart e-newsletter is providing food tips from a new CHD recipe book called: For babies who need to get the most out of every mouthful. More information […]
13/04/18 - Heart conditions & infective endocarditis
Children with heart conditions are more at risk of infective endocarditis. Infective endocarditis is a rare but life-threatening disease. It’s therefore very important for heart children to take good care of their teeth. Find out more from CHF’s information sheet: https://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/your-childs-teeth/
