Feb 02nd 2024 - Jaxon’s Story
told by his mum Amanda Jaxon is about to turn 7 next month on the 2nd of February, he was born with Ebsteins anomaly, we didn’t know until he was 6 hours old. At 4 days old Jaxon went into multi organ failure and he was given 24 hours to live. We were lucky […]
Feb 01st 2024 - Lilygrace’s Story
told by mum At my 20 week scan, I was told by the sonographer that there was something wrong with my baby’s heart and we had to go back for further scans by cardiology and fetal medicine. They confirmed that my baby has the very rare Heterotaxy syndrome right atrial isomerism (two right atria, […]
Sep 25th 2023 - Team Let’s Get Fiscal take on the CHF Inflatable 5k
We would like to send a thank you to Team Let’s Get Fiscal from Dexter & Sharpe Accountants on their fantastic achievement on recently completing one of our new fundraising events, the Inflatable 5k in aid of CHF and amazingly surpassing their fundraising target! […]
Aug 21st 2023 - Victoria Saddington Tipping
Victoria and her husband decided to fundraise and raise awareness for CHF by taking on the Snowdonia Weekend with Discover Adventure 2023! Being a personal cause to Victoria, as she was born with a Heart Defect, a VSD/Hole in the Heart, this will never heal. “For me, the hole is central in my heart and […]
Sep 11st 2023 - BeWILDerwood Norfolk Activity Day 2023
CHF is excited to invite children with heart conditions* and their families to a fun day** of outdoor and creative activities at BeWILDerwood, Norfolk Wednesday 25th October 2023! The whole family can spend the day running, whizzing and clambering on the sustainable wooden play structures, from aerial ropewalks to climbing walls, balancing logs and muddled […]
Aug 05th 2023 - Fundraise for CHF with the Inflatable 5K
Take part in an Inflatable 5K event to raise money for CHF’s new Exercise Programme The Inflatable 5K events are just the first steps you can take toward supporting and fundraising for the new CHF Exercise Programme. The world’s largest and best fun run obstacle course the ‘Inflatable 5K’ has got even bigger and bouncier […]
May 01st 2024 - CHF 100 meters a day in May challenge
Grab your goggles and dive on in! Join CHF on our Swim 100 Meters a day in May challenge! All children and young people benefit from being physically active, and swimming can be very good exercise for a child with heart conditions. Not sure about where to start, why not try a different swimming stroke […]
Apr 29th 2023 - Take part in the CHF 100 miles in May challenge
1 in 100 babies in the UK are born with a heart condition, between 500 – 1000 develop a heart conditions after they are born. Join CHF and run, walk, or skip to the beat by signing up, grabbing yourself a FREE CHF t shirt and walk up to 100 or as many miles as […]
Mar 28th 2023 - Lincoln’s Story
Told by his mother Tanya My youngest son has a complex Congenital Heart Defect (CHD) and Heterotaxy Syndrome RAI meaning he has misplaced organs and no spleen, basically he has a complex anatomy. We found out at the anatomy scan that there was something wrong with his heart. He had his first surgery at 4 […]
Oct 12nd 2022 - Event for parents and carers of children with heart conditions – Have your say!
We are planning in person activities for children with heart conditions and invite families and carers to join the CHF team for a focus group discussion. This will be a great opportunity to meet one another, share experiences and concerns as a group, and to help us ensure CHF continues to meet needs and concerns […]
