Mar 18th 2020 - COVID-19 coronavirus latest update from the British Congenital Cardiac Association

COVID-19 (Corona Virus): Vulnerable groups with congenital heart disease Congenital heart disease is a general term for a range of birth defects that affect the normal way the heart works. The term “congenital” means the condition is present from birth. On 16 March 2020 the UK Government issued new guidance on social distancing for many […]

Mar 12nd 2020 - Covid-19 infection in cardiac patients advice from the British Congenital Cardiac Association

The BCCA has issued advice regarding the Covid-19 coronavirus The advice can be downloaded in pdf form here.

Mar 10th 2020 - COVID-19 coronavirus

CHF recommends keeping up to date with the news and information about the coronavirus by checking the Gov UK website. This NHS website is also helpful.  The main advice is: Regular hand  washing Self isolation if in contact with a source Do not attend the GP or hospital with cold symptoms If unsure phone 111 […]

Mar 06th 2020 - Does your child have a rare condition? Write to your MP.

CHF with other organisations is urging NICE (National Institute of Health and Care Excellence) to make fair decision regarding the prescribing of drugs to people with rare conditions, this includes some heart conditions. If this affects a member of your family we urge you to write to your MP, download a template letter to which […]

Feb 20th 2020 - A new book about heart conditions for Key Stage 2 children

After the success and popularity of the book for small children Rosie goes red, Violet goes blue CHF is planning a new book aimed at slightly older children. This book will feature two brothers, one with a serious heart condition and one without. The book will go through their day highlighting the differences and similarities between […]

Feb 20th 2020 - Rico’s story

My name is Kirsty, I am a mum to a handsome little boy who was born with congenital heart block. In my 28th week of pregnancy I was told that my baby had a serious heart condition and would possibly not survive; he would need surgery the minute he was born. When Rico was born, […]

Feb 18th 2020 - Short film about surgical scarring

Well done to Paul Mulgrew who has CHD. He has produced this short thought provoking film that deals with cardiac surgical scarring. View this post on Instagram A post shared by RAINDANCE (@raindancefilmfestival) on Feb 17, 2020 at 10:14am PST

Feb 12nd 2020 - Student documentary about children’s heart conditions

Help raise awareness of heart conditions and encourage others to do the same, particularly during heart month. Ellie has asked us to share this message: “I’m a university student and I’m making a documentary about congenital heart disease for my final project. I’m looking to speak to a family whose child had open heart surgery […]

Feb 05th 2020 - Public Health England – request for feedback from public

Public Health England are interested in getting feedback from members of the public who are interested in screening or have used the National Screening Committee website. Your feedback will help PHE to make improvements to the website to ensure that it is useful and accessible to those involved in understanding and commenting on screening policies. […]

Jan 30th 2020 - Global, regional, and national burden of congenital heart disease, 1990–2017

An interesting article in The Lancet contains the good news that globally from 1990 to 2017 there has been an increase in survival rate of over 30% of infants born with CHD. The full article can be read here.   SDI = Social demographic indicator Global, regional, and national burden of congenital heart disease, 1990–2017: […]