10/09/12 - MP hosts Children’s Heart Federation Parliamentary Reception
Mike Penning, MP for Hemel Hempstead, hosted a Parliamentary Reception for the Children’s Heart Federation with constituent and CHF campaigner Alex Smith. Alex is a mother whose daughter’s heart condition went undiagnosed for over two years and she is now promoting a new campaign which seeks to increase early diagnosis of children’s heart conditions. Congenital […]
07/09/12 - Alex Cunningham MP Backs Campaign to Boost Early Diagnosis
Stockton North MP Alex Cunningham is backing a new campaign which seeks to increase early diagnosis of children’s heart conditions after meeting Alex Smith, a parent whose child’s heart condition went undiagnosed for over two years. Congenital Heart Disease is the most common birth defect, affecting over 5,000 children in the UK each year. Despite […]
04/09/12 - Todmorden News – Brave toddler faces open heart surgery
Published on Tuesday 4 September 2012 A TODDLER faces a third open heart operation as her battle to beat a rare condition continues. Evie-Mae Thorp, who is 17-months-old, is set for crucial surgery later in the year as doctors fear her health could soon deteriorate. Mum Carly, 19, said: “They will be inserting a plate into […]
31/08/12 - Lancashire Telegraph – Brave Todmorden tot
Brave Todmorden tot facing critical third open heart operation Friday 31st August 2012 A TODDLER faces the fight of her life after being told she must have a third open heart operation. Brave 17-month-old Evie Mae Thorp is set for surgery any day in a battle for survival, as doctors fear her health could deteriorate […]
Aug 28th 2012 - Alfie The Brave
By Jo James Alfie is my third child and we found out at our 20 week anomaly scan that Alfie was going to be poorly. Nothing prepares you for that and the journey that follows. I developed pre-eclampsia which added to his complications and he needed to be delivered by Cesarean-Section. He was born on the 11th […]
23/08/12 - Wharfdale Observer – Children’s heart charity hits back at MP regarding surgery shake-up comments
2:00pm Sunday 19th August 2012 A children’s heart charity has hit back at a Wharfedale MP’s call for an announcement about changes in where and how heart surgery is provided to be delayed. Greg Mulholland (Lib Dem, Leeds North West) last week criticised the publication of an implementation plan for a national shake-up that would […]
22/08/12 - Report of the long term conditions, disability and palliative care subgroup
The Children and young people’s health outcomes forum has now published their final report. A number of points of interest, which have been included in the report and were raised by CHF in our response were: They push for greater collection of data in line with our response about those with LT health conditions including […]
22/08/12 - No decision about me, without me – Consultation Response
Conclusion of the CHF Consultation Response from ‘No decision about me, without me – consultation’ Download the full response below. “The benefits of shared decision making are clear. Handing greater say to patients and involving them in their treatment improves the quality of healthcare they receive objectively, as well as improving their satisfaction with care as well […]
22/08/12 - ACHD Review – CHF Feedback
Question 1 What do you think of our proposed model of organised care into networks of specialist centres, intermediate centres and local centres with links to non-cardiac care? 1. The need for earlier diagnosis of conditions Earlier diagnosis should be a major goal of the health system, not only is it of benefit to […]
19/08/12 - ILkley Gazette – Heart Charity Hits Back at MP
Children’s heart charity hits back at MP regarding surgery shake-up comments 2:00pm Sunday 19th August 2012 A children’s heart charity has hit back at a Wharfedale MP’s call for an announcement about changes in where and how heart surgery is provided to be delayed. Greg Mulholland (Lib Dem, Leeds North West) last week criticised the […]
