18 Oct 2017

17/10/17 - CHF is taking CHD campaigns to Parliament

CHF is going to the Houses of Parliament to promote CHF’s pulse oximetry and Think HEART campaign on Wednesday 18 October. CHF is campaigning for the introduction of pulse oximetry screening for all newborn babies in the UK. The pulse oximetry test measures the oxygen levels in the blood and is proven to be effective […]

16 Oct 2017

16/10/17 - Restart a Heart Day 2017

Restart a Heart Day 2017 takes place on Monday 16 October with the aim of teaching life-saving cardiopulmonary resuscitation (CPR) skills to as many people as possible. This event will see the St John Ambulance; Yorkshire Ambulance Service; British Heart Foundation; and British Red Cross train as many children and young people as possible to […]

13 Oct 2017

09/10/17 - Constant inspiration: CHF’s heart children & families

From signposting international enquiries to congenital heart disease (CHD) resources as well as ensuring the heart child’s and their parents & carer’s voices can be heard at the centre of the CHD narrative in the UK and globally. Find out how CHF maintain a strong signal in communicating CHD research developments and one-to-one support. More […]

06 Oct 2017

02/10/17 - Starting congenital heart disease conversations

There are several ways to start a congenital heart disease (CHD) conversation that leads to trusted support. Find out more about the four key areas in which CHF provide direct support, one of which includes our Molly’s dollies. More information: http://www.chfed.org.uk/how-we-help/

29 Sep 2017

25/09/17 - World Heart Day

World Heart Day this year is on Friday 29 September 2017. Find out how ‘small changes can make a powerful difference.’ Further information: https://www.worldheartday.org/

Sep 25th 2017 - Jade’s son’s story

Hello my name is Jade and I’m hoping that by sharing my son’s story I can help raise awareness of congenital heart conditions. Having had three children previously, when I went for my 20-week scan during my fourth pregnancy I was prepared for the procedure to take a while. However, while the sonographer was looking […]

Sep 19th 2017 - Scarlett’s Story

I gave birth to the most beautiful baby girl on the 12th September 2013. Scarlett showed no signs of illness growing up, only the occasional cough and cold. She was such a happy baby, and when she started walking, she loved playing and running around. Her favourite was toy story; she would have her Jessie […]

Sep 18th 2017 - 5 September – Safe in schools

5 September 2017, CHF attended a meeting of the Healthcare in Schools Alliance, a group of children’s charities that over the years have pooled their resources and expertise to improve the welfare, education and health of school students. Currently the Alliance is working on a campaign called Safe in schools and is making arrangements for […]

22 Sep 2017

18/09/17 - Awareness of congenital heart disease (CHD): a collaborative effort

The Children’s Heart Federation (CHF) is working with partner groups to ensure that awareness of congenital heart disease (CHD) and it’s diagnosis and support is extended as widely as possible. Find out more about our collaborative aims and work. Further information: http://www.chfed.org.uk/about-us/member-groups/

15 Sep 2017

11/09/17 - Caring for heart children: A practical handbook

CHF partner group Heartline Families is offering associate members a practical handbook for parents and carers of children diagnosed with a heart condition.  Already in it’s 5th edition, chapters within the book address all key areas of supporting a heart child and their siblings including diagnosis; schooling; holidays; genetic counselling and many other subjects as […]

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