Jun 20th 2018 - 6th June NHS NIPE Working Group
Big responsibility. Big opportunities. CHF attended the NHS Newborn and Infant Physical Examination (NIPE) Advisory Group where there was a dynamic exchange of information including updates on the technical aspects of the NIPE system which screens newborn babies within 72 hours of birth and then again between 6 and 8 weeks of age, for conditions relating […]
Jun 19th 2018 - 22nd May MP letter template launch
CHF supporters may already be aware of our campaign for the introduction of Pulse Oximetry screening for all newborn babies in the UK. The test which measures the oxygen levels in the blood is proven to be effective in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its […]
18/06/18 - Help develop the NICE guideline on atrial fibrillation
The National Institute for Health and Care Excellence (NICE) are inviting lay members to join their atrial fibrillation guideline committee. This is an 18 month commitment and will ensure your views of atrial fibrillation are fully taken on board through experiences gained either as a patient or as an advocate for a loved one diagnosed […]
11/06/18 - Your story. Your voice.
CHF has received a media request for health stories ahead of the 70th anniversary of the National Health Service. This project aims to capture people’s memories of the NHS via a voicemail platform with a selection of audio recordings being published with permission via print and online. You’re invited to call up and record experiences […]
31/05/18 - Help with travel costs to hospital
Are you aware that you could receive help with the cost of travel to hospital if you have a low income? The NHS Low Income Scheme could help with the cost of travelling to receive NHS treatment. Further information: https://www.nhsbsa.nhs.uk/nhs-low-income-scheme
May 14th 2018 - 11th May Write to your MP about safety in school settings for children with a medical health condition
CHF and the Health Conditions in Schools Alliance is campaigning for safety for all children with a medical health condition in a school setting. We want you to write to your MP about this. Download a template letter here. After it came to light that children with health conditions were not getting the care they […]
May 03rd 2018 - 2nd May CHF visits the Department of Education – Safe in Schools
CHF joined other children’s health charities from the Health conditions in schools alliance and met with Nadhim Zahawi, Parliamentary Under-Secretary of State for Education. We requested • For all schools to post their medical conditions policy on their website and to make this actually happen … • For […]
Apr 26th 2018 - 11th May Write to your MP about pulse oximetry testing
CHF has been campaigning for the introduction of Pulse Oximetry screening for all newborn babies in the UK since 2015. The test – measuring the oxygen levels in the blood – is proven to be effective in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its inclusion in the […]
23/04/18 - Experience of Care Week 2018
Experienced excellent care at your heart child’s hospital appointments? Why not share your feedback on great care or suggest what could have worked better? Experience of Care Week takes place on 23 – 27 April and addresses what is happening across health and social care to improve experiences of care for patients, carers and staff. […]
16/04/18 - Nutrition and congenital heart disease (CHD)
CHF are focusing on nutrition and support for children with congenital heart disease (CHD). Our campaigns page is hosting recipes from parents sharing their insights and recipes. And our Heart2Heart e-newsletter is providing food tips from a new CHD recipe book called: For babies who need to get the most out of every mouthful. More information […]
