16/07/18 - Fact sheet on Attendance
Children with medical conditions should not be penalised if they are unable to come to school because of their medical condition. If you are facing problems, this fact sheet explains: what support is in place and what your rights are. Further information: https://bit.ly/2zJCnqw
13/07/18 - Kawasaki Disease: The most common acquired heart disease in infants and toddlers
Researchers from the UK and Germany have published a study addressing Kawasaki Disease (KD). KD is the most common acquired heart disease that mostly affects infants and toddlers. ‘Delayed diagnosis and treatment results in coronary artery aneurysms in up to 25% of all affected individuals.’ Link to study: https://bit.ly/2LdVHka Further information from CHF’s Kawasaki Disease […]
Jul 12nd 2018 - 12 July Heart service new standards and sharing the CHD awareness message with new fora
Making every minute count, the Children’s Heart Federation (CHF) hot footed to two key events this Thursday. It was a privilege to be part of the dynamic conversation at the 2018 London Protection Conference. Located at the London Landmark Hotel it offered a significant opportunity to introduce delegates to CHF’s work alongside children and families […]
09/07/18 - Organ donation & transplantation
NHS Blood and Transplant’s Organ Donation and Transplantation Activity Report for 2017/2018 includes the following key figures: The consent rate for deceased donation has reached a record high, with 65.5% of families agreeing to support the donation of a relative’s organs. The number of deceased donors reached a record high of 1574 an 11% increase […]
06/07/18 - Young adults with congenital heart disease and driving
Did you know that you must tell the Driver and Vehicle Licensing Agency (DVLA) if you have congenital heart disease and have symptoms that affect safe driving? Further information: https://www.gov.uk/congenital-heart-disease-and-driving
Jul 05th 2018 - 05 July NHS turns 70: How much better our children are due to the National Health Service (NHS)
This month’s 70th anniversary of the National Health Service (NHS) offers a significant opportunity to thank all the multi-disciplinary teams and support staff that comprise team NHS. How much better our children are because of them. In this blog we also offer a global focus on health themes which translate across NHS specialties. Especially three […]
02/07/18 - Let’s hear it for CHF’s fundraising stars!
Your fantastic efforts and support of CHF’s work is helping CHF provide more congenital heart disease (CHD) resources for heart children and their families as well as raising much needed congenital heart disease awareness to new communities. New month, new week, same outstanding motivation. Further information: http://www.chfed.org.uk/category/fundraising-stars/
Jun 28th 2018 - 26 June Knit and natter group give their time to the Molly’s Dollies
CHF attended the Knit and natter group at Bishop’s Stortford Methodist Church with a whole crowd of Molly’s Dollies. Demand for our Molly’s Dollies is increasing steadily so Joanna Heath Project manager for CHF had approached the Knit and natter group leader Kate Rowe asking if the members would be willing to embroider scars on […]
Jun 27th 2018 - 19th June Sharing CHD awareness at primary school
Isla from Cross Arthurlie Primary School in East Renfrewshire recently contacted CHF to tell us why she chose the Children’s Heart Federation (CHF) as her charity of choice for a school research project. Each child was tasked with presenting a charity’s work via their poster presentation. Isla told us: ‘I have two sisters and my […]
25/06/18 - International research and Fontan patients
An international research study asks: Can endurance training improve physical capacity and quality of life in young Fontan patients? Further information: https://bit.ly/2ynrz0F
