Nov 12nd 2018 - Eleanor’s story
Told by her mother Helen. “Eleanor was born in August 2012 following a normal pregnancy and birth so mother and daughter were discharged from hospital later that day. At four days old, Eleanor was seen by a GP who undertook tests to check normal functions. It was at this point that we were told to […]
Nov 12nd 2018 - Gabby’s story
Told by her mother Maria. “Gabby was born in December 2010. The day after her birth following regular checks we were advised that they had picked up a murmur and believed that it was likely to be caused by a hole in the heart that would probably close after time. We were told that Gabby […]
Nov 05th 2018 - 04 November CHF joins parkrun project PROVE
Four children who have all undergone heart surgery met together with their families at Beehive junior parkrun. The runners all completed the course in good time, smiling all the way as their families cheered them on or ran alongside them. Read more about the four runners here. The Children’s Heart Federation (CHF) and parkrun have […]
25/10/18 - Children’s Heart Study summer newsletter
Download the project newsletter here. Over 5000 paediatric cardiac surgery procedures are performed in the UK each year and early survival has improved to over 98% however there is concern that parents are not adequately informed about possible outcomes. This research project being carried out at Great Ormond Street Hospital with input from CHF, looks […]
22/10/18 - Fathers’ experiences of having a child with a congenital heart defect
A new research study aims to capture fathers’ experiences when their child is born with a congenital heart defect (CHD). Are you a father with a child diagnosed with CHD? You are invited to participate in this study. The research study will focus on the fathering role and the interaction between fathers and healthcare professionals […]
19/10/18 - CHF and junior parkrun
CHF will be attending the junior parkrun at Welwyn Garden City on the 4th November. Please tell us if you’re coming via email: info@chfed.org.uk Please turn up at 08:30 am for a 09:00 am start. If your child wants to participate in the run they need to register and bring along their barcode. We would […]
17/10/18 - CHF: How we help
Find out more about CHF’s information resources including our ‘Heart Conditions’ and ‘Caring for a Heart Child’ information sheets. Find out more information too about CHF’s Molly’s dolly rag doll that introduces heart children and families to effectively cope with the issue of scarring before the heart child’s surgery takes place. Further information: http://www.chfed.org.uk/how-we-help/
15/10/18 - Restart a Heart Day: 16 October
Restart a Heart Day is a day of action with the aim to teach vital life-saving cardiopulmonary resuscitation (CPR) skills to as many people as possible. Your hands could save a life. Find out more: https://www.resus.org.uk/events/rsah/
12/10/18 - How to support CHF
Find out more about how to help CHF support more heart children and families. Every step of your fundraising run will help us make a world of difference. Further information: http://www.chfed.org.uk/events-and-fundraising/
11/10/18 - CHF’s Molly’s dollies & International Day of the Girl Child
On this International Day of the Girl Child we introduce you to CHF’s Molly’s dollies. So named after the first child to receive one was called Molly. The Children’s Heart Federation (CHF) have come up with the idea of using Molly’s Dollies, a rag doll with surgical scars, to help explain scarring to children with heart conditions. […]
