Jan 14th 2019 - Guideline on infant, children and young people’s experience of healthcare
The National Institute for Health and Care Excellence (NICE) are recruiting lay committee members for the guideline on infant, children and young people’s experience of healthcare. If you are a care provider, family member or have experience of the voluntary and community sector, why not find out more before recruitment closes at 5pm on Friday […]
Jan 15th 2019 - Myles’ story
Told by his mother Charlotte When I found out I was pregnant we were so happy, but I suffered a big bleed at eight weeks and again at 16 weeks into my pregnancy. All then went well until my 20-week scan. I was told I was having another boy and was so happy but then […]
Jan 04th 2019 - New Year hospital appointment? Find out how to prepare yourself and your heart child
There can be a great deal of information provided during an appointment. By preparing ahead you will have a better chance of understanding the information you are given and will feel empowered with a list of informed questions. Find out how to prepare and plan by reading CHF’s ‘Talking to Doctors’ information sheet. Further information: […]
03/01/19 - Plans for life saving skills to be taught in schools
The Education Secretary has today underlined the importance of every child having the chance to learn life-saving skills such as CPR and how to get help in a medical emergency, under plans for health education to be taught in every school. Further information: https://www.gov.uk/government/news/damian-hinds-learning-life-saving-skills-in-school-is-crucial
Dec 21st 2018 - Feeding children with heart conditions
Are feeding times a challenge for you and your heart child and family? The Children’s Heart Federation (CHF) has an information sheet on feeding children with heart conditions. Download this resource and find practical advice on: The reasons that heart children have eating problems Tips for increasing calories Suggestions on getting help from other people […]
Dec 10th 2018 - CoaguChek Test Strips for Point of Care and Home Use: Risk of false high results (MDA/2018/033)
The government has issued important information regarding CoaguChek Test Strips for Point of Care and Home Use manufactured by Roche Diagnostics GmbH. There is a risk of false high results. Affected CoaguChek test strips may give false high results for INR values above 4.5 when compared to laboratory results and this may lead to incorrect […]
Nov 29th 2018 - 28 November – telling the Molly’s Dolly story at NCCHW
CHF gave a presentation telling the Molly’s Dollies story to the members of the National Council for Child Health and Well-being. The members were interested to hear the background story of why CHF started providing the Molly’s Dollies, the research that had gone into finding suitable dolls and the many ways they help children with […]
Nov 20th 2018 - Guidelines for children with heart conditions participating in parkrun
CHF has been liaising with parkrun UK to draft a set of guidelines for parents of children with heart conditions and parkrun organisers. The guidelines provide reassurance and information so that children with heart conditions can confidentally take part in the run and benefit from the exercise, fun and sense of achievement. ‘When I was […]
19/11/18 - Global Atrial Fibrillation Aware Week
Atrial Fibrillation (AF) is the most common arrhythmia (heart rhythm disorder). Over 1.5 million people have been diagnosed with AF in the UK alone. This Global AF Aware Week 19 – 25 November, find out more about AF and its detection and management. Further information: http://www.heartrhythmalliance.org/afa/uk/af-aware-week
