Press Releases & Statements

Press releases and statements issued by Children's Heart Federation.

Feb 22nd 2021 - World-first paediatric heart transplant technique boosts number of life-saving operations for children in the UK

Using a technique that ‘reanimates’ the heart outside of the body, Great Ormond Street Hospital, Royal Papworth Hospital and NHS Blood & Transplant expand the donor pool and perform six paediatric heart transplants in 2020 Great Ormond Street Hospital (GOSH) and Royal Papworth Hospital (RPH) have collaborated to introduce a world-first paediatric heart transplant technique […]

Sep 03rd 2019 - Need for families to talk about organ donation as 2,500 potential transplants missed last year – press release from NHS blood & transplant

NHS Blood and Transplant is urging people to talk to their families during Organ Donation Week (September 2 to 8) as figures show around 2,500 organs, each representing an opportunity for transplant, were missed in the last year because families said no to donating their relative’s organs. Despite record levels of organ donation, family refusals […]

08 Dec 2017

02/12/17 - The Children’s Heart Federation (CHF) welcomes NHS England’s decision to sharpen standards for Congenital Heart Disease (CHD) services

At their meeting on Thursday 30 November 2017 the Board of NHS England discussed the outcome of the public consultation on proposed changes to paediatric cardiac services and decided the following: The Liverpool Heart and Chest Hospital NHS Foundation Trust will provide level 1 adult CHD services in the North West; The University Hospitals of […]

Jul 18th 2017 - Response from CHF to the proposals from NHS England to implement the standards for congenital heart disease (CHD) services for children and adults in England

1. The capacity in which we are responding  CHF is a national CHD patient/parent led organisation that represents patients with all forms of CHD and their carers. We have taken account of the views expressed by both our partner organisations and by individual parents and carers. 2. Our response to NHS England’s proposal that in […]

05 Jun 2017

17/02/17 - Consultation on CHD Proposals

INFORMATION FROM NHS ENGLAND Dear Patient & Public Engagement Group member As you are aware we have been preparing for consultation on proposals for Congenital Heart Disease services for some months. We are now able to launch the consultation and it is now live – 9.30am 9th February 2017. The consultation will run until 23.59 on […]

10 Jul 2016

07/07/16 - CHF comment on decision of the Specialised Services Commissioning Committee (SSCC)

We congratulate NHS England on its thorough review of congenital cardiac services and we are very pleased to see the SSCC making tough but very necessary decisions that will bring the congenital heart disease service closer to meeting the agreed standards of care. We recognise that by making clear that some hospitals do not and […]

08 Jul 2016

30/06/16 - The patient first

CHF are interested to hear the outcome of the Bristol review and note that improvements have been made to the service since 2014. However, we would point out that congenital cardiac services must be one of the most reviewed services in the UK. We are currently waiting to hear how, and when, the  new standards […]

22 July 2015

22/07/15 - Statement urging a swift response into implementation of congenital heart standards

News statement: 22 July 2015 Children’s heart charity urges swift implementation of congenital heart standards warning of unstable heart services for children The Children’s Heart Federation hopes that the new congenital heart care standards and service specifications will be agreed by the NHS England Board tomorrow (23 July 2015).  The new standards have been recognised […]

2nd Apr 2015

02/04/15 - Statement in response to Open Heart online journal report

Children’s Heart Federation supports a focus on survival outcomes and measures of morbidity for heart children The Children’s Heart Federation supports the recommendation to focus on survival outcomes for heart children in a recent online report published in ‘Open Heart’. Despite the rise in the complexity of cases, the survival of children with congenital heart […]

24th Sept 2014

24/09/14 - Children’s Heart Federation welcomes NICE guidance for home-testing with INR machines

The Children’s Heart Federation today welcomes new guidance from the National Institute for Health and Care Excellence (NICE) which recommends self-monitoring devices for NHS use by people on long-term warfarin therapy. This guidance is one step closer to giving patients to choice to self-test their blood at home and the heart charity hopes this new […]

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