We help thousands of families a year cope with congenital heart disease (CHD) by providing advice and information by telephone, e-mail and through our website.

Click to view information sheets about heart conditions

Click to view information sheets about caring for heart children

We provide information, advice and support on a range of different issues including:

• Most common heart conditions and treatments
• Performance of heart surgery centres in the UK
• Diagnosis, equipment and medicines
• Lifestyle issues affecting heart children, e.g. school and special educational needs, benefits, feeding, etc.
• Advice on general issues such as communicating with medical professionals and how to get a second opinion.
• Contact with relevant support organisations
• Contact with other parents and families.

Telephone

Calls to the Infoline can be made via 0300 561 0065. If no one is available to take your call, it will go through to an answerphone where you can leave a message.  We aim to provide you with a good service but if you feel we’ve let you down please let us know by emailing us and we will try to put it right, if we are unable to do so please contact our Chief Executive at our office address, if she can’t put it right, then please contact our board of trustees.

Email

You can email the team directly at info@chfed.org.uk

Download and buy information

CHF has a wide range of information sheets, books and other resources on heart conditions and looking after a child with a heart defect.

• Caring for heart children (information sheets)
• Heart conditions (information sheets)
• Books and other resources

Charges for information sheets
We do not currently charge for our information sheets. However, it costs money to update them and also to send them out to people who do not have access to the internet. If you have found the information helpful, we welcome you to make a donation towards the cost of the information service.

Copyright note for Children’s Heart Federation information sheets:
Both individuals and organisations are welcome to print and photocopy any complete information sheet from this section. Organisations are free to distribute them to service users and colleagues, but must ensure they always use the latest version of the information sheet, as available on the website, at the time of distribution. If you do use any information in this way, please acknowledge that it is from the Children’s Heart Federation.

Patient and Public Participation in Commissioning Health and Care: Statutory Guidance for Clinical Commissioning Groups and NHS England

Further information:

https://www.england.nhs.uk/wp-content/uploads/2017/05/patient-and-public-participation-guidance.pdf

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