Information Service

We help thousands of families a year cope with congenital heart disease (CHD) by providing advice and information by telephone, e-mail and through our website.

Click to view information sheets about heart conditions

Click to view information sheets about caring for heart children

We provide information, advice and support on a range of different issues including:

Information Standard

is_markThe Children’s Heart Federation is a certified member of The Information Standard, a quality assurance standard established by the Department of Health to improve the quality of health and social care information.

The Children’s Heart Federation aims at producing and disseminating objective information that has been peer reviewed and complies with all aspects and requirements of the Information Standard scheme.

We intend to use The Information Standard to:

  • Disseminate information about heart disease in children
  • Assure families, children and practitioners that our information is gathered from high quality peer reviewed sources
  • All information that has been produced following the Information Standard guidelines is marked with the Information Standard logo which is displayed above.


Calls to the Infoline can be made via 0300 561 0065. If no one is available to take your call, it will go through to an answerphone where you can leave a message.  We aim to provide you with a good service but if you feel we’ve let you down please let us know by emailing us and we will try to put it right, if we are unable to do so please contact our Chief Executive at our office address, if she can’t put it right, then please contact our board of trustees.


You can email the team directly at

Download and buy information

CHF has a wide range of fact sheets, books and other resources on heart conditions and looking after a child with a heart defect.

Charges for factsheets
We do not currently charge for our factsheets. However, it costs money to update them and also to send them out to people who do not have access to the internet. If you have found the information helpful, we welcome you to make a donation towards the cost of the information service.

Copyright note for Children’s Heart Federation factsheets:
Both individuals and organisations are welcome to print and photocopy any complete factsheet from this section. Organisations are free to distribute them to service users and colleagues, but must ensure they always use the latest version of the fact sheet, as available on the website, at the time of distribution. If you do use any information in this way, please acknowledge that it is from the Children’s Heart Federation.

Patient and Public Participation in Commissioning Health and Care: Statutory Guidance for Clinical Commissioning Groups and NHS England

Further information:

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