Press Releases & Statements
28/03/13 - Statement – Safe and Sustainable High Court Decision of 27/03/2013
Yesterday the Court recognised the need for the NHS to continue its plan to improve services for children with congenital heart disease in order to ensure that services are safe and sustainable in the future, however the judge did rule that one part of the process was ‘unfair’. While CHF acknowledge the Court’s decision we […]
07/03/13 - Safe & Sustainable – CHF Comment re: Judicial Review Judgement 7/3/2013
We are disappointed that this decision will result in further delays to the establishment of the new children’s heart care network, adding to the considerable anxiety that some families of children with a heart problem have been living under for many months now. Uncertainty about the final configuration of surgical and cardiology centres is now […]
15/01/13 - Southend’s Janice Banks Open Water Charity Swim
For immediate release A local grandmother from Southend-on-Sea, Janice Banks, will be taking part in an extra special event this year to support her grandson and a charity close to their family’s hearts. On the 10th of February Janice will be swimming a mile in what is the biggest open water event in […]
31/10/12 - Children’s Heart Federation responds to CQC investigation into Bristol Children’s Hospital care
After a number of concerns over cases of poor care at Bristol Children’s Hospital and an unannounced inspection of the hospital by the Care Quality Commission (CQC) a number of issues have been raised about the level of staffing and training at the unit. The Children’s Heart Federation has raised its serious concerns about these […]
17/10/12 - Children’s Heart Federation and new alliance launch campaign for greater access to INR self-monitoring
The countdown starts today to the launch of a new campaign aimed at giving long-term warfarin patients greater choice in the management of their condition. The campaign will be launch in the House of Commons on the 24th October 2012 The Children’s Heart Federation has supported children with heart conditions and their families for almost […]
16/10/12 - CHF response to the Education Select Committee’s call for evidence -SEND
Draft legislation on Reform of provision for children and young people with Special Educational Needs Children’s Heart Federation Education Select Committee Submission Download as PDF 1. Introduction 1.1 The Children’s Heart Federation (CHF) is theUK’s leading children’s heart charity. It has 23 member groups from across the county which are comprised of local/regional […]
21/09/12 - National Children’s Heart Charities Voice Serious Concerns over Possible Further Legal Action
For Immediate Release It is extremely disappointing that possible legal action could delay further vital improvements to children’s heart services. Children have waited too long for change and another protracted legal battle is the last thing families want. As national children’s heart charities we remain deeply concerned that children still do not have access to […]
17/09/12 - Children’s Heart Federation statement about possible further legal action over Safe and Sustainable
The Children’s Heart Federation (CHF), theUK’s largest children’s heart charity, is disappointed that proposed legal action could further delay vital improvements to children’s heart services. Children and families have waited too long for change and a protracted legal battle could put children’s lives at risk. We remain deeply concerned that children still do not have […]
14/09/12 - Children’s Heart Federation Resource Wins BMA Patient Information Awards 2012
The Children’s Heart Federation and BHF won a joint award for best Long-Term Conditions publication at the BMA Patient Information Awards held at BMA House on Thursday 13th September 2012. The ‘Straight from the Heart’ resource is for young people aged between 13 and 19 who have an upcoming heart procedure in hospital. The resource […]
24/07/12 - Children’s Heart Federation urges parents, clinicians and politicians to get behind NHS decision over Children’s Heart Surgery
The Children’s Heart Federation represents 23 UK-based voluntary organisations working for children and young people with congenital and acquired heart disease and their families. We cover the full spectrum of CHD, whilst our individual member groups concentrate on specific conditions or provide support in specific locations. We act as the voice of the CHD carer’s […]
