News
18/04/12 - Any further delays to improvements in children’s heart services ‘extremely worrying’
For immediate release With the outcome tomorrow of the Appeal against the Judicial Review regarding Safe and Sustainable and the Royal Brompton Hospital, the Children’s Heart Federation, the UK’s leading Children’s Heart Charity, has voiced its concerns about the delays in the implementation of the higher standards of paediatric cardiac care recommended in the Safe […]
18/04/12 - Milton Keynes Citizen – Federation has a Heart over Easter
Published on Wednesday 18 April 2012 The Children’s Heart Federation (CHF) brightened up Easter for children suffering from heart conditions, with help from Virgin Money. Staff from Virgin Money’s Milton Keynes branch, along with representatives from national charity CHF, today visited Birmingham Children’s Hospital to deliver chocolate Easter eggs donated by Virgin Money staff and customers. All 36 […]
07/11/11 - CHF comment on the outcome of the Royal Brompton Hospital Judicial Review
In the light of today’s ruling on the Judicial Review of the Safe and Sustainable Children’s Cardiac Review, CHF, the UK’s leading children’s heart charity, urges everyone affected by the decision to keep children with heart conditions and their families in the forefront of their thinking and push forward until new service standards for paediatric […]
24/08/11 - Statement from CHF on the publication of findings from the Safe and Sustainable consultation
CHF, the leading UK charity dedicated to supporting children with congenital and acquired heart conditions and their families, welcomes the publication today (Wednesday 24 August 2011) of the analysis of the responses to the Safe and Sustainable Children’s Heart Services in England consultation. The findings reflect the respondents’ overwhelming emphasis on quality of service, which […]
05/08/11 - Charity urges vigilance for heart defects missed by newborn screening
Children’s Heart Federation (CHF) welcomes the findings of the Pulse Oximetry Screening Study published in The Lancet on Friday 5 August 2011 and urges the NHS to introduce this test as a routine activity before newborn babies are discharged from hospital, as an important strand in the detection strategy for congenital heart disease (CHD) alongside […]
26/07/11 - Statement from the Children’s Heart Federation about asking the Care Quality Commission for reassurance about the paediatric cardiac surgical service in Leeds
The Children’s Heart Federation (CHF) has written to the Care Quality Commission seeking reassurance that children’s heart surgery at Leeds is managed and delivered to consistently high standards to ensure that the long term quality of life outcomes for the children under the care of the unit reach the standards appropriate for UK paediatric cardiac […]
18/07/11 - Children’s Heart Federation response to the consultation on the Green Paper: Special Education Needs and Disability – Support and Aspiration
Children’s Heart Federation (CHF), the leading UK charity and umbrella organisation for charities working to support children and young people with congenital and acquired heart disease (CHD) and their families welcomes the government’s impulse to improve the support for children with special educational needs (SEN) and disabilities. As a member of the Health Conditions in […]
01/07/11 - The response of the Children’s Heart Federation to the consultation: Safe and Sustainable – A new vision for children’s congenital heart services in England
About Children’s Heart Federation The Children’s Heart Federation (CHF) is the leading national charity and the umbrella body for voluntary organisations working to meet the needs of children and young people with congenital and acquired heart conditions (CHD) and their families. Our vision is that all children with heart conditions have both their medical and […]
22/06/11 - ‘Stalling the heart review will put children at risk,’ charity warns MPs
The Children’s Heart Federation (CHF), the umbrella organisation for charities supporting children and young people with a heart condition, has contacted all MPs in advance of the Adjournment Debate on the Review of congenital cardiac services for children in the Chamber on Thursday 23 June (Member in charge: Stuart Andrew) urging them to vote against […]
04/05/11 - Comment from the Children’s Heart Federation in support of applying the Safe and Sustainable standards
The Children’s Heart Federation has been following the campaigns supporting children’s heart care at units around the country with respect and admiration for the passion, commitment and organisational skills of the parents, combined with a deep concern that in the rising wave of support for ‘Save Our Surgery’ lobbying, important issues are being drowned out. […]
