News
24/08/11 - Statement from CHF on the publication of findings from the Safe and Sustainable consultation
CHF, the leading UK charity dedicated to supporting children with congenital and acquired heart conditions and their families, welcomes the publication today (Wednesday 24 August 2011) of the analysis of the responses to the Safe and Sustainable Children’s Heart Services in England consultation. The findings reflect the respondents’ overwhelming emphasis on quality of service, which […]
05/08/11 - Charity urges vigilance for heart defects missed by newborn screening
Children’s Heart Federation (CHF) welcomes the findings of the Pulse Oximetry Screening Study published in The Lancet on Friday 5 August 2011 and urges the NHS to introduce this test as a routine activity before newborn babies are discharged from hospital, as an important strand in the detection strategy for congenital heart disease (CHD) alongside […]
26/07/11 - Statement from the Children’s Heart Federation about asking the Care Quality Commission for reassurance about the paediatric cardiac surgical service in Leeds
The Children’s Heart Federation (CHF) has written to the Care Quality Commission seeking reassurance that children’s heart surgery at Leeds is managed and delivered to consistently high standards to ensure that the long term quality of life outcomes for the children under the care of the unit reach the standards appropriate for UK paediatric cardiac […]
18/07/11 - Children’s Heart Federation response to the consultation on the Green Paper: Special Education Needs and Disability – Support and Aspiration
Children’s Heart Federation (CHF), the leading UK charity and umbrella organisation for charities working to support children and young people with congenital and acquired heart disease (CHD) and their families welcomes the government’s impulse to improve the support for children with special educational needs (SEN) and disabilities. As a member of the Health Conditions in […]
01/07/11 - The response of the Children’s Heart Federation to the consultation: Safe and Sustainable – A new vision for children’s congenital heart services in England
About Children’s Heart Federation The Children’s Heart Federation (CHF) is the leading national charity and the umbrella body for voluntary organisations working to meet the needs of children and young people with congenital and acquired heart conditions (CHD) and their families. Our vision is that all children with heart conditions have both their medical and […]
22/06/11 - ‘Stalling the heart review will put children at risk,’ charity warns MPs
The Children’s Heart Federation (CHF), the umbrella organisation for charities supporting children and young people with a heart condition, has contacted all MPs in advance of the Adjournment Debate on the Review of congenital cardiac services for children in the Chamber on Thursday 23 June (Member in charge: Stuart Andrew) urging them to vote against […]
04/05/11 - Comment from the Children’s Heart Federation in support of applying the Safe and Sustainable standards
The Children’s Heart Federation has been following the campaigns supporting children’s heart care at units around the country with respect and admiration for the passion, commitment and organisational skills of the parents, combined with a deep concern that in the rising wave of support for ‘Save Our Surgery’ lobbying, important issues are being drowned out. […]
16/02/11 - ‘Being at sixes and sevens is good for children’s heart care’ asserts Children’s Heart Federation
The Children’s Heart Federation (CHF) is today urging politicians and healthcare practitioners to accept that being at sixes and sevens is good for children’s heart care, a reference to the need to reduce the number of active surgical units from ten to six or seven, in order to achieve the best possible health outcomes for babies […]
14/02/11 - Charity chief warns Cameron, “Sticking to your guns on Big Society will blast a hole in services for sick children”
For immediate release, Monday 14 February Charity chief warns Cameron, “Sticking to your guns on Big Society will blast a hole in services for sick children” Anne Keatley-Clarke, Chief Executive of the Children’s Heart Federation, is warning today that by pushing ahead with his plans for the Big Society, without a proper impact assessment of […]
07/02/11 - Children’s Heart Federation launches its 2011 partnership with Build-A-Bear Workshop
For immediate release – Monday 7 February 2011 Children’s Heart Federation (CHF) is launching its 2011 partnership with Build-A-Bear Workshop to help raise funds and awareness for children with heart problems at the Bournemouth branch of Build-a-Bear Workshop on 9th February 2011, when Coronation Street and Impressions Show star Debra Stephenson and a class of six year olds from […]
