News
08/03/17 - Building the Right Support, Transforming Care Together National Conference
Date: Tuesday 28th March 2017 Venue: Molineux Stadium, Waterloo Road, Wolverhampton, WV1 4QR Time: 10.00am – 4.00pm The conference is being delivered with the NHS England and partners to increase understanding and awareness of the Transforming Care agenda to disabled young people, parents/carers from diverse communities and stakeholders.There will be workshops and discussions regarding Building […]
07/03/17 - CQC report on the state of care in NHS acute hospitals
The Care Quality Commission (CQC) the independent regulator of all health and social care services in England has published a report on the state of care in NHS acute hospitals. Download it here.
Mar 06th 2017 - “Tell us about your care” – Disability Rights UK
You may be interested in giving feedback on your experiences of care either for your family member or yourself. Disability Rights UK have recently entered into a year long partnership with the Care Quality Commission (CQC) to gather feedback from disabled people about their experience of health and social care services, via CQC’s ‘Tell Us […]
01/03/17 - Safety and Inclusion of Children with Medical Conditions at School – All Party Parliamentary Group Meeting
A representative from the CHF attended a meeting at the House of Commons today looking at the support given by schools to children with health conditions such as a congenital or acquired heart disease.
23/02/17 - Transition Information Day for parents/ carers of children and young people with Special Educational Needs and Disabilities.
This event in Kent will focus on Transition from secondary education to sixth form, college, apprenticeships, supported employment, internships, independent living and residential care. Many organisations involved in the process will be present and able to provide information and advice. Download the flyer KPCF Transition Information Day Flyer_ Final.
17/02/17 - Consultation on CHD Proposals
NHS England’s consultation on proposals for Congenital Heart Disease (CHD) services opened on: 09 February 2017 and will be open to receive your views until 23.59 on Monday 17 July 2017. The aim of this public consultation is to provide the public with information about the CHD proposals and the potential impact they may have, […]
17/02/17 - Consultation on CHD Proposals
INFORMATION FROM NHS ENGLAND Dear Patient & Public Engagement Group member As you are aware we have been preparing for consultation on proposals for Congenital Heart Disease services for some months. We are now able to launch the consultation and it is now live – 9.30am 9th February 2017. The consultation will run until 23.59 on […]
13/02/17 - The ARCHIE Study: The early use of Antibiotics for ‘at Risk’ CHildren with InfluEnza
‘This project is investigating the effect of giving antibiotics to children of 6 months to 12 years old with long-term conditions in the first five days of developing flu or flu-like illness to see if it helps prevent complications. This includes children with heart conditions. The Study is working with NHS sites across England and […]
10/02/17 - Do you care for a child with special educational needs and disabilities?
The Whole School SEND Consortium is running their first Summit on 23 February 2017 in London. This will be an opportunity for all who care and work alongside children with special educational needs to meet together and create a new and dynamic forum to improve outcomes for children with SEND. This event will take place at: The […]
Feb 09th 2017 - NHS England CHD Consultation
NHS England’s consultation on proposals for Congenital Heart Disease (CHD) services took place: 09 February 2017 until 23.59 on Monday 17 July 2017 All details, proposals and lists of events and activities both digital and face to face that were held can be found on the consultation hub. Further information: http://www.engage.england.nhs.uk If you have any […]
