News
24/11/16 - Congenital Heart Disease (CHD) & Disability Living Allowance (DLA) meeting at Parliament on 29 November 2016
Tuesday 29 November 2016 will bring together national children’s heart and adult congenital heart charities to a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor Pack. We need your help to get as many MPs to attend the meeting as possible. The event will […]
21/11/16 - CHF’s Christmas Lights Challenge & CHD Awareness 2016
CHF launch our Christmas Lights Challenge! How long will it take our heart children and families to unravel the Christmas lights this year? CHF’s Molly’s dollies took a record 5 minutes! And they’ve taken this photo to prove it! Share your record time too and why not donate your minutes in pounds to CHF’s JustGiving […]
14/11/16 - CHD & DLA Awareness Event at Parliament on 29 November 2016
On Tuesday 29 November 2016 national children’s heart and adult congenital heart charities are holding a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor pack. We need your help to get as many MPs to attend the meeting as possible which will be hosted by: […]
31/10/16 - Cardiac conditions in the young
Are you a young person who has recently been diagnosed with a heart condition? CHF member group Cardiac Risk in the Young (CRY) has written an e-booklet called: Cardiac Conditions in the Young: From ARVC to WPW This downloadable booklet provides a clear explanation on medical terms and is specifically written for a newly diagnosed […]
24/10/16 - Communicating about cardiomyopathy
Are you a medical professional with patients presenting with cardiomyopathy? Please know that CHF member group Cardiomyopathy UK has a support network of affected volunteers who are willing to speak with newly diagnosed patients via the phone or email. Further information: http://www.cardiomyopathy.org/medical-professionals/mp
17/10/16 - British Congenital Cardiac Association (BCCA) AGM 2016
The Annual Meeting of the British Congenital Cardiac Association (BCCA) will take place on: 23 – 24 Nov 2016 at the East Midlands Conference Centre, Nottingham. Sessions will include: Ethical dilemmas in congenital heart disease (CHD) from fetus to adult; Advances in imaging; Preventing sudden death in the young. Further information: http://www.bcca2016.co.uk/
10/10/16 - Congenital heart disease and pacemakers
Hearing that your child may require a pacemaker may be an understandably challenging moment. And clear impartial information is vital for you all as a family. Please know that CHF has a free and downloadable factsheet on pacemakers. Information that you can share and return to. Further information: https://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/if-your-child-needs-a-pacemaker/
04/10/16 - Children’s & parents’ informed & willing consent to heart surgery
CHF are supporting research by Prof Priscilla Alderson and Dr Katy Sutcliffe from University College London (UCL), focusing on children’s and parents’ informed and willing consent to heart surgery. We are planning research with families and healthcare staff about how young patients aged 6-15 years are informed and involved in decisions about their heart surgery. […]
26/09/16 - Communicating about cardiomyopathy
Every question you may have about cardiomyopathy is really important to us. Please know CHF member group Cardiomyopathy UK has cardiomyopathy support nurses available to answer your questions and concerns. You are welcome to contact the cardiomyopathy nurses on-line or via phone and email. Communication is key and whether you or a loved one have […]
24/09/16 - A week to remember
CHF member group Cardiac Risk in the Young (CRY)’s Raising Awareness Week 2016 takes place: 19 – 27 November 2016 CRY’s core aim is to reduce the incidence of young sudden cardiac death through: raising awareness supporting the bereaved providing expert cardiac pathology screening for young people to identify cardiac conditions research to inform policy & […]
