News

Jan 13rd 2025 - Team CHF for The Big Half 2025

Join thousands of other participants in this spectacular half marathon event through the heart of London. Great for novices and experienced participants alike, the course winds its way through the capital from Tower Bridge to the iconic Cutty Sark. Come for the finisher’s medal or to celebrate London’s diversity.              […]

Jan 31st 2025 - Heart Month 2025

  Each year, National Heart Health Month is observed in February. During this time, awareness of congenital and acquired heart conditions in children are bought to the fore. This year we are exploring the fascinating ways mental health and heart health are connected, and how small shifts in mindset, lifestyle, and self-care can strengthen both. […]

Feb 03rd 2025 - Turning Adversity into Purpose

Well Financial and CHF team up When Chris Harland, a director at Well Financial, experienced a heart attack last year, it was the last thing he expected. Chris was 48, in good health, active and ran a marathon 18 months before! Not the kind of person you’d never imagine facing such a life-threatening event. Yet, […]

Jan 27th 2025 - Parents to receive neonatal care leave and pay

New Right to Neonatal Care Leave & Pay Thousands of working families with babies in neonatal care will be entitled to additional time off with Neonatal Care Leave. Currently, many working families across the UK are having to return to work while their babies are sick in hospital, and these measures aim to address some […]

Dec 30th 2024 - ‘Hoping for a Christmas miracle’: Children waiting months for life-saving procedures as all NHS beds full

Featured in LBC latest article, the CHF chief executive spoke in relation to critically ill children waiting up to eight weeks for life-saving procedures because there’s no space in the NHS.   The chief executive of the Children’s Heart Federation, Rajwant Kaur Singh, told LBC situations like Fatima’s are “devastating”. She said she didn’t believe […]

Jan 15th 2025 - Alexander’s Story

Being told our son had a heart defect and required surgery was a huge shock to us. There was nothing detected on the many ultrasounds scans I had throughout my pregnancy, and having no family history of heart issues, it never crossed our minds there could be a problem. Alexander was born at 37 weeks […]

Nov 26th 2024 - Mental Health Support for Children with CHD and their Families

You may remember, as part of our acknowledgement of mental health week in May 2024 we conducted a short survey to find out more about the mental health support available for children with heart conditions, their families and carers across the UK. Here we present back our findings, which we hope will inform our future […]

Nov 22nd 2024 - Nicholas’ Story

told by his mother Eliamara  Nicholas its a brave and a very bright clever boy, he brings joys and happiness to as every day and give us reason to believed in good reason to live . He also my second son, he has a sister called Isadora, 4 yrs old than Nicholas. Which’s loves him. […]

Nov 18th 2024 - Wreath Making Workshop

Join CHF at the Chelmsford Club for wreath making and festive fun. Decorate your home for the season and show your support for children with heart conditions   3rd December 2024 Arrivals from 6pm The Chelmsford Club, CM2 0RG

Nov 12nd 2024 - Roadmap for the Healthiest Generation of Children Ever

We are proud to be part of the The Children and Young People’s Health Policy Influencing Group (HPIG) a strong, independent voice advocating for improvements to the health of babies, children and young people. Despite the government’s manifesto commitments to ‘the healthiest generation ever’ and ‘prevention first’ approach to health, a coalition of charities and […]

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