News
Sep 05th 2025 - 2025 London West End Theatre Trip
Owning your story is powerful – it’s something we want every child with a heart condition to feel confident doing. Whether it’s sharing your experiences, advocating for your needs, or simply embracing who you are, every voice matters. That’s why this month, we’re drawing inspiration from history with a twist: join us as the Six […]
Aug 11st 2025 - Join Us for a Heartfelt Webinar from Well Financial
We’re proud to be partnering with Well Financial through their Meaningful Mortgages initiative – where every mortgage they arrange for our community helps raise valuable funds for children living with heart conditions. Coffee & Questions Webinar 📅 Wednesday 13th August 2025 🕡 6:30pm – 7:30pm 📍 Online – Free to Attend In this special live […]
May 02nd 2025 - Summer 1 in 100 Challenge
Sign up for free and do 100 of ANY chosen activity this summer while raising £100 to support children with heart conditions and their families throughout the UK. Did you know that 1 in 100 babies are born in the UK with a heart condition? This is why we created the summer 1 in […]
May 26th 2025 - Launch of the Nation CHD Research Network
The Congenital Heart Research Network is a collaborative network for conducting multi-centre research in the UK and Ireland, to improve the care and outcomes of children and adults born with congenital heart disease We are pleased to be part of the Executive Committee helping to ensure that patient priorities in research are delivered. We showcased […]
May 26th 2025 - Trustee appointed as president of ECHDO
We are delighted to share that our trustee, Karen, has been appointed as the new President of the European Congenital Heart Disease Organisation (ECHDO). “I am honoured to be the new president of ECHDO and be able to represent the UK. I’m looking forward to working with the new board and organisations across Europe to […]
Mar 25th 2025 - Legoland Activity Day
Join us for a fun day out for children with heart conditions, their families and carers at Legoland Windsor Resort on Saturday 21st June 2025. With over 55 rides and attractions, there’s something for all ages and abilities. Please complete the booking form for each group member who is attending. Child applies to a […]
Mar 19th 2025 - 100 Miles in May Challenge 2025
Join us for 100 miles in May, an outdoor adventure whilst raising vital funds to support heart children and their families. Each one of your steps could be life changing! Grab your Fitbits and get your friends and family together for an outdoor adventure whilst raising vital funds to support heart children and their families […]
Mar 14th 2025 - Statement on the abolition of NHS England
We welcome any initiative that puts patients first and increases the resourcing of the NHS. We await the ‘3 big shifts’ in services suggested – analogue to digital, sickness to prevention and hospital to community – and the potential for improvements to the care pathways, earlier detection and long term outcomes for children with heart […]
Apr 08th 2025 - Our Vice-Chair hits impressive parkrun milestone
Our very own Vice-Chair Paul had a special weekend as he clocked up a parkrun milestone with his 50th volunteering credit with, he said: “It was very special, as someone who was told not to do sport as a kid due to my heart condition, being able to participate through both doing the events and […]
Feb 18th 2025 - 2025 Family Activity Day
Join the Children’s Heart Federation for an outdoor activity day at Ghyll Head, Windermere When: Monday 21st April 2025 Where: Ghyll Head, Bowness-on-Windermere, Windermere LA23 3LN Activities: Kayaking, Zip wires, Caving / Dark tunnels exploration, High Ropes, Climbing and much more! Food & Refreshments: Provided Booking: Booking is essential and Places are limited so book […]
