News
Sep 01st 2026 - Starting a New School Year: Supporting Your Child with a Heart Condition
The start of a new school year is a good time to check that your child’s school has everything they need to support them. A few simple conversations and checks before term starts can help your child, their teachers and support staff feel prepared and confident for the year ahead. Does the school have […]
Aug 24th 2026 - The Pyramid 100
This summer, Paul and Christine took on our Summer 1 in 100 Challenge, choosing to complete 100 squats together as their challenge The Pyramid 100 But for Paul, this challenge was about much more than completing 100 squats. It was a reflection of his congenital heart journey and a reminder that, however alone you may […]
Aug 03rd 2026 - Orla’s Story
Told by mum, Rachel While I was pregnant with her, the ultrasounds showed a significant hole in her heart and since then a few smaller ones were found too. Due to this, I was monitored closely throughout my pregnancy, something I am extremely grateful for but also found difficult. We found out much later that […]
Jul 31st 2026 - Petition: Fund travel reimbursements for families of children with lifelong conditions
Help Us Support Families Facing Essential Medical Travel Costs Families of children with heart conditions and rare disorders should not face financial hardship because of medical travel costs for children who need specialist care. Accessing the right treatment should not depend on a family’s ability to afford travel expenses. Across the UK, specialist centres provide […]
Jul 21st 2026 - Summer 1 in 100 Challenge 2026
Sign up for FREE this summer Did you know that 1 in 100 babies in the UK are born with a heart condition? That’s why we created the Summer 1 in 100 Challenge, to raise awareness, funds, and support for children with heart conditions and their families. By taking on a 1 in 100 challenge and raising £100 for […]
Jun 23rd 2026 - Top Tips for Staying Cool This Summer
for babies, children and young people with heart conditions Warm weather can be harder for everyone, and children with heart conditions may tire more quickly, become dehydrated faster, or struggle to regulate their body temperature. With heat weather warnings across the UK we’ve put together some practical tips for babies, children and young people with heart conditions. Why staying cool matters Hot weather can make […]
Apr 14th 2026 - Paulton’s Park Family Activity Day
Unfortunately, bookings have now closed due to exceptionally high demand Join us for a fun family activity day out for children with heart conditions, their families and carers at Paulton’s Park, the UKs favourite family theme park. Saturday 27th June 2026 With over 70 exciting rides and attractions, set within 140 acres of beautiful parkland […]
Apr 08th 2026 - 100 Miles in May Challenge 2026
We’re welcoming people of all ages and fitness levels to walk, roll or run 100 miles throughout the month of May to help us raise awareness of the 1 in 100 babies that are born with a heart condition Whether you’re hitting the streets, trails, or treadmill, every mile you move will help raise money and awareness for children with heart conditions and […]
Mar 19th 2026 - Planting Seeds of Hope with Heart
This spring, we’re planting more than just seeds, we’re planting hope with heart. 🌿 Our Planting Seeds of Hope with Heart campaign is dedicated to raising funds and awareness for children living with heart conditions and their families. Whether they’re facing a new diagnosis, recovering from surgery, or adjusting to lifelong treatment, we believe no one should go through it alone. Why This Matters Heart conditions don’t just affect […]
Mar 17th 2026 - Coffee & Questions – Workplace Support for Heart Families
Join us for Coffee & Questions – Workplace Support for Heart Families, an informal and interactive session exploring how workplaces can better support employees who are part of, or caring for, children affected by heart conditions. 🗓 Wednesday 15 April ⏰ 7:30pm Book your place today Heart conditions can have a significant impact not only on […]
