News
19/11/18 - Global Atrial Fibrillation Aware Week
Atrial Fibrillation (AF) is the most common arrhythmia (heart rhythm disorder). Over 1.5 million people have been diagnosed with AF in the UK alone. This Global AF Aware Week 19 – 25 November, find out more about AF and its detection and management. Further information: http://www.heartrhythmalliance.org/afa/uk/af-aware-week
25/10/18 - Children’s Heart Study summer newsletter
Download the project newsletter here. Over 5000 paediatric cardiac surgery procedures are performed in the UK each year and early survival has improved to over 98% however there is concern that parents are not adequately informed about possible outcomes. This research project being carried out at Great Ormond Street Hospital with input from CHF, looks […]
22/10/18 - Fathers’ experiences of having a child with a congenital heart defect
A new research study aims to capture fathers’ experiences when their child is born with a congenital heart defect (CHD). Are you a father with a child diagnosed with CHD? You are invited to participate in this study. The research study will focus on the fathering role and the interaction between fathers and healthcare professionals […]
19/10/18 - CHF and junior parkrun
CHF will be attending the junior parkrun at Welwyn Garden City on the 4th November. Please tell us if you’re coming via email: info@chfed.org.uk Please turn up at 08:30 am for a 09:00 am start. If your child wants to participate in the run they need to register and bring along their barcode. We would […]
17/10/18 - CHF: How we help
Find out more about CHF’s information resources including our ‘Heart Conditions’ and ‘Caring for a Heart Child’ information sheets. Find out more information too about CHF’s Molly’s dolly rag doll that introduces heart children and families to effectively cope with the issue of scarring before the heart child’s surgery takes place. Further information: http://www.chfed.org.uk/how-we-help/
15/10/18 - Restart a Heart Day: 16 October
Restart a Heart Day is a day of action with the aim to teach vital life-saving cardiopulmonary resuscitation (CPR) skills to as many people as possible. Your hands could save a life. Find out more: https://www.resus.org.uk/events/rsah/
12/10/18 - How to support CHF
Find out more about how to help CHF support more heart children and families. Every step of your fundraising run will help us make a world of difference. Further information: http://www.chfed.org.uk/events-and-fundraising/
11/10/18 - CHF’s Molly’s dollies & International Day of the Girl Child
On this International Day of the Girl Child we introduce you to CHF’s Molly’s dollies. So named after the first child to receive one was called Molly. The Children’s Heart Federation (CHF) have come up with the idea of using Molly’s Dollies, a rag doll with surgical scars, to help explain scarring to children with heart conditions. […]
10/10/18 - CHF focus on World Mental Health Day
On this World Mental Health Day CHF focus on research addressing parents’ experiences of caring for their child at the time of discharge after cardiac surgery and during the post-discharge period. CHF was part of this study and moderated the closed forum for discussion on our Facebook page. Further information: https://www.jmir.org/2018/5/e155/
08/10/18 - Baby Loss Awareness Week 09–15 October
If you’ve been affected by the loss of a baby, please know there are several groups ready to support you. With full understanding. Pregnancy and baby loss is often a taboo subject. You can help break the silence around baby loss by talking to your friends and family about Baby Loss Awareness Week and by […]
