News

Jun 26th 2019 - Pulse oximetry – your chance to voice your opinion

The UK’s National Screening Committee has been considering routine pulse oximetry screening for critical heart defects in newborn babies for a number of years. A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A […]

27 June 2019

23/05/19 - Public consultation – have your say. Deadline 9 August 2019

A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A public consultation is now being held on whether the evidence presented supports the decision. This is your chance to tell your story […]

24 May 2019

20/05/19 - CHF’s congenital heart disease (CHD) information service

CHF’s congenital heart disease (CHD) information service offers resources focusing on heart conditions as well as a wide variety of information sheets on all aspects of caring for a heart child.  These include: planning holidays as a family hardship funds sourcing insurance companies specialising in children with a health condition. Further information: https://www.chfed.org.uk/how-we-help/information-service/

15 May 2019

15/05/19 - What we do and how we help

That’s it really, we’ve produced a new document explaining what CHF does and how we help. You can download it here.

14th May 2019

14/05/19 - Let us know your experiences of pulse oximetry testing

or lack of it. CHF is joining with other charities in campaigning for pulse oximetry testing on all new born babies. We’d like to hear from you if: Your child had a heart defect detected by a pulse oximeter. or If your child was not offered a test and a heart condition was missed as […]

13 May 2019

13/05/19 - Search and spend to help CHF

We’re excited to announce Savoo Search, Save and Raise as our new fundraising partner, and we’d like to introduce you to this innovative way of donating. Simply use Savoo Search as your default search engine (the same way as you would your current search engine) and Savoo will donate 1p for every search. If you’re […]

10 May 2019

09/05/19 - What we do and how we help

If you are thinking of fundraising for CHF or simply want to know more about what we do, then we have a new leaflet that tells you exactly that. Download it here. What we do and how we help

09 May 2019

06/05/19 - Children with congenital heart disease (CHD) and exercise

CHF provides an information sheet with guidelines for children with congenital heart disease (CHD) or acquired heart conditions participating in parkrun. Parkrun is a free, weekly running event across the UK where children can take part in a shared run, rather than a race. Further information: https://www.chfed.org.uk/wp-content/uploads/2019/04/parkrun-guidelines-for-children-with-heart-conditions.pdf

03 May 2019

29/04/19 - CHF’s Thank You to CHF Champion Fundraisers

A fantastic weekend of CHF fundraising was achieved by Timi Veerasamy running the London Marathon and Chris Chapman taking on the Yorkshire Three Peaks Challenge.  Their fantastic efforts have been outstanding! A massive thank you Timi and Chris for supporting CHF’s heart children and families on their congenital heart disease journey. You’d done us proud […]

26 Apr 2019

26/04/19 - Champion CHF fundraisers

Yorkshire and London host two champion Children’s Heart Federation (CHF) fundraisers this weekend. Chris Chapman is taking on the Yorkshire Three Peaks Challenge on 27 April and Timi Veerasamy is running the London Marathon on Sunday 28 April. We’re wishing Chris and Timi perfect running weather. A big thank you for all your training too! […]

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