News
04/07/16 - Profound Thank You
CHF send a profound thank you to Ruth Lowe. Ruth, a Cardiac Risk in the Young (CRY) bereavement supporter and retired teacher from Preston has been recognised as the UK’s 530th Point of Light. Ruth’s only son, Andrew passed away from young sudden cardiac death in 2004. From this deep loss, Ruth stoically set about extensive fundraising […]
30/06/16 - The patient first
CHF are interested to hear the outcome of the Bristol review and note that improvements have been made to the service since 2014. However, we would point out that congenital cardiac services must be one of the most reviewed services in the UK. We are currently waiting to hear how, and when, the new standards […]
28/06/16 - NIPE e-learning module
The NHS Newborn and Infant Physical Examination (NIPE) e-Learning module is a free training resource which launched on 25 November 2013. Are you a student midwife? Please speak to your lead midwife for education as you may be eligible to access this NIPE resource. So far only 12 out of 45 eligible universities (26.6%) have students […]
27/06/16 - NHS Blood & Transplant Stakeholder Event 2016
Do you have any questions for NHS Blood and Transplant (NHSBT)? CHF are attending the NHSBT Stakeholder Event 2016 on 28 June and would like to share your views as part of the conversation on: Saving and Improving Lives Together: Engaging Effectively with Black and Asian Communities Please email your questions to info@chfed.org.uk We look […]
23/06/16 - Summer camps for children
Would you like to find out more about summer camps for children with serious illness? The 2016 summer camp season for children with congenital heart defects and their siblings is starting! The charity organising these events is also including visitor dates where you can come, visit and see the camps in action! Visitor days are […]
22/06/16 - Traveller Gypsy Fair – new date to be confirmed
The Traveller Movement has informed CHF that this summer’s Gypsy Traveller Fair will now not take place on Sunday 26 June 2016. A new date will be scheduled in due course. CHF look forward to letting you know the new date and time!
21/06/16 - Understanding Children’s Heart Surgery Outcomes
The power of one – multiplied! CHF parents’ views have been at the heart of developments that today launch a parent-led tool opening up NHS children’s heart surgery data to families. ‘Understanding Children’s Heart Surgery Outcomes’ is a website that will help people make sense of published survival data about children’s heart surgery in the […]
20/06/16 - 3D printing & biofabrication summer school
A summer school course on medical 3D printing will take place on 11 – 15 July 2016 at Utrecht University, Faculty of Medicine. The course will provide: the basics of 3D printing a hands-on Ultimaker workshop and an introduction to 3D design software. The 3D printing and biofabrication summer school course will also address state-of-the-art examples […]
20/06/16 - CHD and Mathematics
Researchers are using mathematical modelling as a ‘decision support system in complex congenital heart defects.’ Further information: https://www.ucl.ac.uk/cardiovascular/research/structural-heart-disease/mathematical-modelling-congenital-heart-disease
15/06/16 - Father’s Day!
CHF wish all our amazing heart dad’s a great day on Sunday! Are you a heart dad? Would you like to share your CHD Story with CHF? We’d love to hear from you! Please email: info@chfed.org.uk Heart dads may already know of CHF’s Facebook page www.facebook.com/chfed And a resource called ‘Heart Dad’s Support‘ which is […]
