News
11/07/16 - Congenital Heart Disease Standards & Specifications
This is a link to the standards that were drafted and agreed by clinicians and patients from all units and which NHS England used to make their recommendations. Further information: https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2016/03/chd-spec-standards-2016.pdf
07/07/16 - CHF comment on decision of the Specialised Services Commissioning Committee (SSCC)
We congratulate NHS England on its thorough review of congenital cardiac services and we are very pleased to see the SSCC making tough but very necessary decisions that will bring the congenital heart disease service closer to meeting the agreed standards of care. We recognise that by making clear that some hospitals do not and […]
07/07/16 - Congenital cardiology 3D printing techniques & imaging science
A 3D congenital cardiology research study cited in the ‘Journal of Clinical Imaging Science’ identifies how medical imaging has been ‘revolutionised by three-dimensional (3D) imaging techniques’. The research study authors from Leuven acknowledge however, that ‘visualisation of the 3D content on two-dimensional flat screens’ is creating limits. ‘3D-printing of graspable models could become a feasible […]
05/07/16 - Congenital Cardiac Nurses Association (CCNA) Conference 2016
The Congenital Cardiac Nurses Association (CCNA) Conference takes place at: The Charles Hastings Building, University of Worcester on Weds 6th July 2016! Keynote speakers include: Professor Alison Twycross Head of Children’s Nursing & Reader in Children’s Pain Management, London South Bank University ‘The Future of Nursing: challenges for those caring for children and young people’ […]
04/07/16 - Profound Thank You
CHF send a profound thank you to Ruth Lowe. Ruth, a Cardiac Risk in the Young (CRY) bereavement supporter and retired teacher from Preston has been recognised as the UK’s 530th Point of Light. Ruth’s only son, Andrew passed away from young sudden cardiac death in 2004. From this deep loss, Ruth stoically set about extensive fundraising […]
30/06/16 - The patient first
CHF are interested to hear the outcome of the Bristol review and note that improvements have been made to the service since 2014. However, we would point out that congenital cardiac services must be one of the most reviewed services in the UK. We are currently waiting to hear how, and when, the new standards […]
28/06/16 - NIPE e-learning module
The NHS Newborn and Infant Physical Examination (NIPE) e-Learning module is a free training resource which launched on 25 November 2013. Are you a student midwife? Please speak to your lead midwife for education as you may be eligible to access this NIPE resource. So far only 12 out of 45 eligible universities (26.6%) have students […]
27/06/16 - NHS Blood & Transplant Stakeholder Event 2016
Do you have any questions for NHS Blood and Transplant (NHSBT)? CHF are attending the NHSBT Stakeholder Event 2016 on 28 June and would like to share your views as part of the conversation on: Saving and Improving Lives Together: Engaging Effectively with Black and Asian Communities Please email your questions to info@chfed.org.uk We look […]
23/06/16 - Summer camps for children
Would you like to find out more about summer camps for children with serious illness? The 2016 summer camp season for children with congenital heart defects and their siblings is starting! The charity organising these events is also including visitor dates where you can come, visit and see the camps in action! Visitor days are […]
22/06/16 - Traveller Gypsy Fair – new date to be confirmed
The Traveller Movement has informed CHF that this summer’s Gypsy Traveller Fair will now not take place on Sunday 26 June 2016. A new date will be scheduled in due course. CHF look forward to letting you know the new date and time!
