News
Oct 05th 2023 - Lacie’s story
Lacie’s story told by her mother Kayleigh At my twenty-week pregnancy scan I was told that Lacie’s heart hadn’t formed properly, this was a terrible shock but it gave me time to prepare for her arrival with the knowledge that she would probably need surgery in order to survive. Lacie was born early after exactly […]
Sep 11st 2023 - BeWILDerwood Norfolk Activity Day 2023
CHF is excited to invite children with heart conditions* and their families to a fun day** of outdoor and creative activities at BeWILDerwood, Norfolk Wednesday 25th October 2023! The whole family can spend the day running, whizzing and clambering on the sustainable wooden play structures, from aerial ropewalks to climbing walls, balancing logs and muddled […]
Aug 05th 2023 - Fundraise for CHF with the Inflatable 5K
Take part in an Inflatable 5K event to raise money for CHF’s new Exercise Programme The Inflatable 5K events are just the first steps you can take toward supporting and fundraising for the new CHF Exercise Programme. The world’s largest and best fun run obstacle course the ‘Inflatable 5K’ has got even bigger and bouncier […]
Jul 31st 2023 - A national strategy to address the James Lind Alliance priorities for children and adults with congenital heart disease
CHF is pleased to have taken part in the development of this newly published strategy which addresses the priorities for research on children and adults with congenital heart disease. Read the full strategy document here. Top 10 priorities for child/antenatal congenital heart disease research 1. How can damage to organs (e.g. heart, brain, lung, kidney, […]
Jul 11st 2023 - Activity days in the North East and North Cumbria
Are you a family living in the North East and North Cumbria? Do you know a child or young person living with congenital heart disease? Join CHF for some interactive day of fun and learning! Scan the QR code or click on the image to find out more
May 01st 2024 - CHF 100 meters a day in May challenge
Grab your goggles and dive on in! Join CHF on our Swim 100 Meters a day in May challenge! All children and young people benefit from being physically active, and swimming can be very good exercise for a child with heart conditions. Not sure about where to start, why not try a different swimming stroke […]
Apr 29th 2023 - Take part in the CHF 100 miles in May challenge
1 in 100 babies in the UK are born with a heart condition, between 500 – 1000 develop a heart conditions after they are born. Join CHF and run, walk, or skip to the beat by signing up, grabbing yourself a FREE CHF t shirt and walk up to 100 or as many miles as […]
Mar 28th 2023 - Family day at Whitemoor Lakes May 20th 2023
Do you know a child with a heart condition who loves adventure and challenges? Then they are invited to attend the CHF activity day on May 20th at Whitemoor Lakes, near Lichfield and can bring along the whole family, (two adult parent or carers plus siblings). There will be a range of […]
Feb 28th 2023 - What we go through every day
Teenager signs a powerful message to other young people with heart conditions As heart month draws to a close a teenager from Crewe has sent out a powerful message in British Sign Language (BSL) to other young people with heart conditions. Robert Allen gives an expressive and emotional performance signing the words of Fight Song […]
Feb 08th 2023 - CHF are recruiting for three new steering groups
Help CHF and children with heart conditions nationwide by sharing your experience in one of our steering groups. CHF are aiming to recruit for three new steering groups that will advise on issues relating to children with congenital or acquired heart conditions through lived and professional experience. We want to hear from: Young people with […]
