Apr 07th 2020 - An important message from the NHS for parents regarding COVID-19 and children.
If your child is ill or injured it can be difficult to decide if/when to call your child’s GP, NHS 111 or go the Accident and Emergency Department (A&E). During the current situation and while the government is asking everyone to stay at home, it can be confusing to know what to do. Here is […]
Mar 31st 2020 - COVID-19 coronavirus advice and information from CHF
COVID-19 coronavirus general information It is good to keep informed by trustworthy sources. An easy to read guide from Public Health England, please share. General advice and information produced by the Citizens Advice bureau. Symptoms Social distancing Public Health England advises that vulnerable groups should practice social distancing stringently. Most children with heart […]
Mar 31st 2020 - COVID-19 INR campaign
CHF is campaigning to raise funds to buy INR machines for children on blood thinning medication. It is vital that these children can have their coagulation levels tested at home to stop them from being put at risk of contracting the COVID-19 coronavirus. Please support and share this campaign.
Mar 30th 2020 - Update to BCCA guidance on COVID-19 coronavirus
The latest update on COVID-19 Coronavirus from the BCCA, it clarifies that the extremely vulnerable group includes just the following: Extremely vulnerable groups for shielding Among people with congenital heart disease, only the following groups are considered to be extremely vulnerable and therefore needing to follow Government guidance on shielding: • Solid organ transplant recipients […]
Mar 23rd 2020 - Help CHF buy INR machines to keep children safe at home
The coronavirus has closed schools and everyone is encouraged to postpone hospital visits or access medical advice remotely. This is impossible for children on blood thinning medication who need to have their coagulation (clotting) levels checked regularly. CHF wants to provide more INR machines for children on blood-thinning medication such as Warfarin during these difficult […]
Jan 06th 2020 - Harper’s story
Told by her mother Ellie On 24th May 2019, we welcomed our beautiful baby girl Harper Sophie Dottie Hall into the world, weighing a tiny 6 lbs 15 oz she was perfect. We had found out at our 20-week scan in January 2019 that Harper had a congenital heart defect called Tetralogy of Fallot’s but […]
Oct 28th 2019 - New Ofsted guidance on medical conditions in school
CHF is pleased to announce that new Ofsted guidance now includes as part of its safeguarding assessment a check on the schools’ support for children with medical conditions. As members of the Health Conditions in Schools Alliance CHF has campaigned alongside other charities to get children with health conditions the support they need at school […]
Oct 09th 2019 - Meeting of Health Conditions in School Alliance
Today CHF will be attending a meeting of the Health Conditions in School Alliance. CHF together with other charities and organisations that are concerned with the welfare of children with health conditions has been working to ensure that schools have a Medical Conditions Policy, that it is available on the school’s website and for OFSTED […]
Sep 25th 2019 - Have you told your child’s heart story?
Is your child’s story on the CHF website? Occasionally we receive a request to use these stories from people conducting research of benefit to children with heart conditions. Please let us know by emailing info@chfed.org.uk if you do not wish for your child’s story to be used for research projects. We would not be passing […]
Sep 04th 2019 - Lily’s story
Told by her mother Katie In April 2015 we found out we were expecting our second child and we were obviously thrilled to bits. The pregnancy progressed normally until I had my 20 week scan, the sonographer found a problem with our baby’s heart and referred us to a consultant at our local hospital. 48 […]
