03/03/14 - Adults and Parents wanted for a study looking into complications following heart surgery
Would you like to take part in a study and help us to better understand what impact heart surgery has had on you and your family? Study is closed • Sign up for focus group now • Join Facebook group discussion now What is the aim of this study? The aim of this study is […]
23/01/14 - CHF Seeks Action to Support Children’s Heart Services Across the Country Following Bristol Inquest
The UK’s leading children’s heart charity says that swift action is needed to support children’s heart services throughout the country. The Children’s Heart Federation’s concerns follow an inquest which ruled there were “missed opportunities” in care of four year old Sean Turner who died after heart surgery at Bristol Children’s Hospital. The charity is warning […]
10/12/13 - Children’s Heart Federation and Funky Voices Choir’s Trafalgar Square Carol Concert
This Christmas we had the pleasure of hosting our annual choir concert in Trafalgar Square. On the 10th December we were joined by the amazing Funky Voices Choir (a mere 300 of the full 800 members!) who blew us away with their energy and creativity. Thanks to Funky Voices’ talent and enthusiasm we drew a […]
09/12/13 - Paediatric Congenital Cardiac Services Oral Statement to the NI Assembly by Health Minister Edwin Poots
Minister James Reilly TD and Minister Edwin Poots MLA today together announced that a team of three international clinicians will carry out an independent assessment of current and future needs for cardiology and cardiac surgery for congenital heart disease in the Republic of Ireland and Northern Ireland. The assessment team will describe the existing hospital […]
16/10/13 - CHF joins call for improvements to the Children and Families Bill
In an open letter to David Cameron and Nick Clegg, CHF has supported the Every Disabled Child Matters Campaign (EDCM) by joining over 100 charities and local parent groups to urge the Government to ensure the Children and Families Bill will make life better for families with disabled children and young people and those with […]
Oct 15th 2013 - Rocky’s Story
James was born on the 24th February 2011, he was born with only one kidney which I thought was his only health complaint until the doctor who did the discharge check on him found a murmur. Following this he was rushed down to the Special Care Unit until he was transferred to Manchester Children’s Hospital […]
Oct 15th 2013 - Kaidon’s Story
I had a difficult birth with Kaidon, when he was born he needed oxygen. Only a few days later he was sent home with the doctors saying ‘all was fine’. Kaidon wasn’t feeding properly and was still jaundiced, when I asked the midwife and health visitor what was wrong, they told me it was because […]
20/09/13 - CHF SAYS CHARITIES MUST WORK TOGETHER IN NEW NHS REVIEW TO GET THE BEST CARE FOR ALL HEART CHILDREN
The Children’s Heart Federation is calling on all heart charities to work together in NHS England’s new review of congenital heart disease services. The UK’s leading children’s heart charity, which represents a growing network of heart organisations across the UK, is calling on all national and local charities to unite behind the aim of pushing […]
