04/05/17 - CHF’s Heart2Heart: Your CHD e-newsletter
A new month and a new look Heart2Heart e-newsletter! Read and share – we’d love to receive your feedback! Email us at: info@chfed.org.uk or via Facebook www.facebook.com/chfed Or Twitter @chfed Let’s make 2017 the most shared in the congenital heart disease (CHD) family! Further information: http://ymlp.com/zPUdBW
28/04/17 - CHD Consultation
Please note that the congenital heart disease (CHD) consultation by NHS England will now progress until: 17 July 2017 Further information: https://www.england.nhs.uk/blog/extending-the-congenital-heart-disease-consultation/
27/04/17 - Talking about CHD
Sharing information about disability with your heart child and siblings may be a positive way of growing in emotional resilience for each heart family and friends on their congenital heart disease (CHD) journey together. CHF’s Molly’s dollies offer a gentle and secure way of talking about the subject of CHD heart surgery scars and some […]
11/04/17 - Cardiomyopathy UK e-magazine
CHF partner group Cardiomyopathy UK’s e-magazine ‘MyLife’ is already set for summer 2017! Download your free copy.
11/04/17 - MyHeart YouTube channel
CHF partner group Cardiac Risk in the Young (CRY) has launched a YouTube channel called MyHeart that is specifically providing personalised help and support to individuals between 12 and 35 years who have been diagnosed with a life threatening cardiac condition. Further information
04/04/17 - Public Health England e-learning screening education
Public Health England has opened a new e-learning platform on screening information and education. All who would like to learn more about PHE screening are invited to register for this innovative new e-learning website. PHE Screening leads the national population screening programmes, which are delivered by the NHS. These identify apparently healthy people who may […]
04/04/17 - The boy who gave his heart away
A new book is being launched this week of a new book about organ donation based on a true story of a teenage heart donor and the teenage recipient. This story was first aired last year on Radio 4 and has been turned into a book “The boy who gave his heart away” by Cole […]
03/04/17 - Daventry to Paris cycle ride
Good luck to Ruth Tomlin cycling from Daventry to Paris on 20th July to raise funds for CHF. https://www.justgiving.com/fundraising/Helen-tomlin1
29/03/17 - Workshop for parents – supporting siblings of disabled children
Parents in East London may be interested in this workshop run by Sibs a UK charity that supports people who grow up with or have grown up with a disabled brother or sister. This workshop will help parents of disabled children find ways of giving attention, information, and support to the other children in their […]
Mar 27th 2017 - Sign for life 2017
The Children’s Heart Federation supports the sign for life 2017 campaign. Read the story of Rhys an 11 year old who suffered from cardiomyopathy who received a heart transplant. Find out more about how organ donation can help save lives. Register here and remember to share your decision with your relatives.
