Feb 02nd 2023 - On His Majesty’s Congenital Heart Service
As part of CHF’s mission to ensure that those affected by congenital heart conditions, and childhood acquired heart conditions, are recognised, supported and have the same opportunities as everyone else, CHF’s Chair and Vice-Chair of Trustees have engaged with the British Cardiovascular Society for many years. Working with other patients, and ably supported by others […]
Dec 12nd 2022 - Important research into the outcomes of heart surgery published
The Children’s Heart Federation (CHF) is excited to report on the findings of important research which highlights improving outcomes of heart surgery, and how congenital heart disease impacts on mental health as future priorities for the care and well-being of people with congenital heart disease (CHD). A team of UK patients, parents and healthcare professionals […]
Dec 06th 2022 - Strep A infection guidance
Update The BCCA has issued the following guidance. Dr Abbas Khushnood, Consultant Paediatric Cardiologist has also given CHF the following guidance for parents. “GAS infections are on the rise, and are certainly becoming a cause of concern for many. GAS being a bacterial infection, the risk for most children with heart conditions is similar to the […]
Sep 09th 2022 - Her Majesty Queen Elizabeth II 1926 – 2022
Our deepest condolences are with the Royal family as we remember Her Majesty’s lifetime of service with heartfelt gratitude and remain inspired by her commitment to charity At this time of public mourning we reflect on The Queen’s reign across the country, the UK and the Commonwealth and her awareness that the “impact of thousands […]
Sep 05th 2022 - Michael’s story
Told by his mother Johanna After a number of antenatal growth scans Michael was deemed small, so an induction was booked at 39 weeks. Everything went well with my induction and before the evening came I was holding my second son. In the evening, on the maternity ward, I mentioned to a midwife that Michael […]
Aug 09th 2022 - New survey from CHF – Individual Healthcare Plans
We’d like to know more about home/school communication and how it works for children with heart conditions, their parents and teachers. Please complete the survey and let us know your experiences so we can provide further help and information.
Aug 01st 2022 - Our heartfelt thanks to Anne Keatley-Clarke upon her retirement after 17 years at the CHF helm
After spending 17 years dedicated to the Children’s Heart Federation and children with congenital or acquired heart conditions our Chief Executive Officer Anne Keatley-Clarke is retiring and will be enjoying some much-earned time with her family and friends. CHF has benefitted from Anne’s expertise and determination over the last 17 years and has played a […]
Jun 22nd 2022 - NCHDA summary report
This important publication is of interest to anyone concerned about children with congenital heart disease. The National Congenital Heart Disease Audit collects and analyses data from all congenital cardiac centres that undertook surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2018 to 2021. The complete summary report […]
Jun 07th 2022 - Write a story for CHF
Children’s story writing competition Do you know a child who loves to write stories? Eight-year-old Ava does. She has written a fantastic story about a little girl whose brother has an organ transplant. You can read it here. Ava grew up with Dominic (Dom) the inspiration behind the CHF little story book Rosie goes red, […]
