9th March - ECHDO AGM
CHF attended the AGM of ECHDO the European Congenital Heart Disease Organisation from 9th to 10th March in Leicester.
Attendees from countries across Europe shared experiences of issues relating to congenital heart disease and listened to a varied programme of lectures.
TrustLaw presentation and main legal issues that NGOs might be facing Lauren Meyer, TrustLaw, Regional Lead for Europe and Legal Manager
European Patients’ Forum presentation and Patient Empowerment (EPF) Elena Balestra, EPF, Membership and Capacity Building Officer
The Play Specialist Role supporting children with a heart condition Louise Ballard, Play Specialist, East Midlands Congenital Heart Centre
Young adults adapting to the workplace or university with a heart condition Paul Willgoss, Children’s Heart Federation Vice Chair
Sports activities for people with CHD Lucy Gowing, Research Fellow at the University of Exeter
If you would like further information about these subjects or speakers please contact info@chfed.org.uk
