9th March - ECHDO AGM

CHF attended the AGM of ECHDO the European Congenital Heart Disease Organisation from 9th to 10th March in Leicester.

Attendees from countries across Europe shared experiences of issues relating to congenital heart disease and listened to a varied programme of lectures.

TrustLaw presentation and main legal issues that NGOs might be facing Lauren Meyer, TrustLaw, Regional Lead for Europe and Legal Manager

European Patients’ Forum presentation and Patient Empowerment (EPF) Elena Balestra, EPF, Membership and Capacity Building Officer

The Play Specialist Role supporting children with a heart condition Louise Ballard, Play Specialist, East Midlands Congenital Heart Centre

Young adults adapting to the workplace or university with a heart condition Paul Willgoss, Children’s Heart Federation Vice Chair

Sports activities for people with CHD Lucy Gowing, Research Fellow at the University of Exeter

If you would like further information about these subjects or speakers please contact info@chfed.org.uk

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