Siblings of Children with CHD Research

From Bangor University:

Want to be involved in research looking at the experiences of siblings of children who have a life-long condition such as CHD?

Research at Bangor University is seeking parents of children with conditions like CHD to answer a questionnaire about their experiences.

The aim of the research is to better understand the strengths and needs of siblings, in order to inform care providers. If you want more information or to take part, you can contact Joanne Fullerton a Trainee Clinical Psychologist running the research: j.fullerton@bangor.ac.uk

The experiences of siblings of children who access palliative care services

Do you have a child with a health condition that requires hospice visits? Do you have another child? We are a team of researchers in Bangor University interested in siblings of children with a health condition who access palliative care services.

We would like to find out about:

The experiences of the sibling
Their life at home and in school.
Their health and well-being.
Their relationship with the brother or sister who is poorly.
How you manage your daily lives.

There is little we know about how siblings adapt when they have a brother or sister who is poorly a lot of the time. This study may help to understand better siblings’ and families’ experiences.

What does taking part involve?

If the sibling is aged 3 to 16 years , we would love to hear from you! You will complete questionnaires about yourself (the caregiver), your child with a life-limiting condition, and the sibling.
Siblings over 8 years old could also fill in a questionnaire about themselves.

How long will it take?