News
23/09/16 - High 5 for CHF’s Fiver Friday!
CHF’s Molly’s dollies are using their highlighters on every number 5 they come across today to invite us all to send CHF a fiver on Fiver Friday! And every five pounds will make a fantastic difference to brightening up a heart child’s congenital heart journey and help fund more Molly’s dollies for more CHF children […]
19/09/16 - CHD sports inspiration Alfie Hewett
CHF send many congratulations to Alfie Hewett — 100% inspiring wheelchair tennis player born with congenital heart disease. Alfie’s Tetralogy of Fallot has provided no limits to Alfie’s representing Great Britain at the 2016 Rio Paralympics and for winning silver medals in both the singles and doubles! A true CHF Champion twice over! Further information: […]
09/09/16 - Health conditions in schools
Does your child’s school require guidance and support in looking after children with health conditions? The Children’s Heart Federation (CHF) is part of the Health Conditions in Schools Alliance. This is a group of over 30 organisations working collaboratively to ensure children with health conditions receive the care that they require in schools. The alliance […]
05/09/16 - Organ Donation Week 2016
Donor – Recipient! CHF’s Molly’s dollies dedicate this Organ Donation Week 2016 to the most profound of connections – the gift of life given by organ donation. Further information: NHS Blood & Transplant Organ Donation & Transplantation Activity Report 2015/16 http://www.odt.nhs.uk/pdf/activity-report/activity_report_2015_16.pdf NHS History of organ donation interactive timeline: http://www.nhs.uk/Tools/Pages/transplant.aspx
01/09/16 - Extending the conversation on organ donation
CHF’s Molly’s dollies are dedicating these September days to extending the conversation on organ donation. And focusing on the most special Present: Organ Donation and the gift of Life. Further information: http://www.nhsbt.nhs.uk/what-we-do/organ-donation-transplantation/
30/08/16 - Survey on paediatric prescribing
Are you a health professional involved in paediatric prescribing? Would you like to participate in a Paediatric Prescribing Support Tools User Survey? The Royal College of Paediatrics & Child Health (RCPCH) is using this survey as a part of a wider research project, run by RCPCH, with the goal of identifying gaps and potential for further […]
22/08/16 - Signs & support for cardiomyopathy
Identifying the signs! CHF member group ‘Cardiomyopathy UK’ has produced a video to help nurses and doctors recognise the key symptoms of cardiomyopathy. Please view the video via the link below: http://www.cardiomyopathy.org/medical-professionals/recognising-symptoms-of-cardiomyopathy A further video identifying ways to support patients with cardiomyopathy can be accessed via the link below: http://www.cardiomyopathy.org/medical-professionals/supporting-patients-with-cardiomyopathy Please contact CHF via info@chfed.org.uk […]
15/08/16 - Respite & support for families with congenital heart disease (CHD) or feeding issues
Would you like to have time for a little bit of ‘we’ time – just you and your loved ones? CHF member group Lagan’s Foundation offers home respite and support services to families of young children with heart defects or feeding issues at home or in hospital. You’re welcome to express an interest and receive […]
08/08/16 - A multi-disciplinary approach to 3D printing in congenital heart disease (CHD) surgery
Research cited in the ‘World Journal for Pediatric and Congenital Heart Surgery’ addresses three dimensional (3D) printing and its applications in surgery for congenital heart disease. This research notes that a multi-disciplinary approach is important for high quality 3D printing. Further information: http://pch.sagepub.com/content/7/3/351.short
03/08/16 - Cardiomyopathy information for children & adults
Have you or a loved one been diagnosed with cardiomyopathy? Please know CHF member group ‘Cardiomyopathy UK’ has a booklet called ‘Living with Cardiomyopathy’ which can be ordered for free or downloaded in digital format. There is also a booklet called ‘Hearty‘ that is aimed at children of 8 years and under, to explain what […]
