News
02/10/17 - Starting congenital heart disease conversations
There are several ways to start a congenital heart disease (CHD) conversation that leads to trusted support. Find out more about the four key areas in which CHF provide direct support, one of which includes our Molly’s dollies. More information: https://www.chfed.org.uk/how-we-help/
25/09/17 - World Heart Day
World Heart Day this year is on Friday 29 September 2017. Find out how ‘small changes can make a powerful difference.’ Further information: https://www.worldheartday.org/
18/09/17 - Awareness of congenital heart disease (CHD): a collaborative effort
The Children’s Heart Federation (CHF) is working with partner groups to ensure that awareness of congenital heart disease (CHD) and it’s diagnosis and support is extended as widely as possible. Find out more about our collaborative aims and work. Further information: https://www.chfed.org.uk/about-us/member-groups/
11/09/17 - Caring for heart children: A practical handbook
CHF partner group Heartline Families is offering associate members a practical handbook for parents and carers of children diagnosed with a heart condition. Already in it’s 5th edition, chapters within the book address all key areas of supporting a heart child and their siblings including diagnosis; schooling; holidays; genetic counselling and many other subjects as […]
Aug 31st 2017 - Fundraising star – Mandy Harbin
Thank you to fundraising star Mandy Harbin who has helped CHF by fund raising in memory of her daughter who had a heart condition.
29/08/17 - Sharing the congenital heart disease (CHD) story
Find out more about the Children’s Heart Federation’s (CHF’s) personal stories of congenital heart disease (CHD). These are the inspiring stories of our heart children and families that motivate CHF constantly. Help us grow the CHD awareness story and extend information and support to all heart children and families. Further information: https://www.chfed.org.uk/category/your-stories/
21/08/17 - Cardiac risk in the young Surgery Supporters Club
CHF partner group Cardiac Risk in the Young (CRY) has just launched the CRY Surgery Supporters Club for young people who have had, or are about to confront, potentially lifesaving surgery of implantation of a defibrillator, pacemaker, or ablation and want to talk to others who have been through a similar experience. Find out more […]
07/08/17 - Young cardiomyopathy information and support
Are you a young person diagnosed with cardiomyopathy? CHF partner group Cardiomyopathy UK has services for children, young people and younger-adults (CYP&YA). These include peer support volunteers and the CYP&YA Panel. Further information: http://www.cardiomyopathy.org/young-people/children-young-people-and-young-adults
31/07/17 - How a Molly’s dolly can help
CHF have found that parents and carers often find it an understandable challenge to explain a forthcoming congenital heart disease (CHD) surgery to their heart children. CHF’s Molly’s dollies can help to bring a visual and tangible link to this conversation. Molly’s dollies are a rag doll that can be personalised for each child’s unique […]
24/07/17 - CHF’s signposts and CHD answers
Whether you have questions about: transition information; education, health and care needs (EHC) assessments; disability discrimination; or home to school transport; you can find answers to these from CHF’s information service as well as our signposts page to organisations including IPSEA, Independent Parental Special Education Advice. Further information CHF’s signpost page: https://www.chfed.org.uk/how-we-help/other-organisations/ Further information IPSEA: https://www.ipsea.org.uk/
