News
27/02/18 - National Congenital Heart Disease Patient Experience Survey
A national Congenital Heart Disease Patient Experience Survey has been launched in all specialist surgical (Level 1) centres in England. There are separate surveys for outpatients and inpatients and for different age groups: A parent/carers patient experience survey aimed primarily at parents of babies and young children; A child patient experience survey; An adult patient […]
26/02/18 - Who is at risk of infective endocarditis?
You are more likely to get infective endocarditis if you already have a heart condition or heart valve damage. It is best to ask your cardiologist if you are more at risk of infective endocarditis. However, generally, your risk for developing infective endocarditis is increased if you: have had a valve replacement; were born with […]
26/02/18 - Adult congenital heart patients’ services: North West of England
Please can readers forward or share the information below; and most especially the Facebook group and contact number for adult congenital heart patients in the North West of England. The Children’s Heart Federation is concerned that not all patients are aware of this situation and hope that those groups who are more child, parent and […]
19/02/18 - Special conversations: Organ donation
CHF is joining NHS Blood and Transplant (NHSBT) and other key stakeholders in a social media special conversation on Twitter all week and on 22 February the Ministry of Housing, Communities and Local Government (MHCLG) will be doing a day of tweets on organ donation. The aim is to get faith groups and community groups […]
16/02/18 - Work matters & congenital heart disease
It’s important that you tell your line manager about your child’s heart condition. Especially if you’re going to need time off or to change the date of your return to work after maternity / paternity leave. Find out more from CHF’s information sheet Working with a Heart Child: http://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/working-with-a-heart-child/
15/02/18 - Personal Health Budgets
A survey has been launched to understand people’s experience of personal health budgets. NHS England has commissioned an online survey to gather feedback about people’s experiences of personal health budgets in England. All current or previous personal health budget and integrated personal budget holders can register now to receive a link to the survey when it […]
Feb 07th 2018 - 7th Feb “Show you have a heart” bracelet
CHF has produced some new bracelets to promote CHD awareness. They can be bought from the CHF shop for an opening bargain price of £1 each, from 1 March the price will go up to £2.00. Go on, show you have a heart!
20/12/17 - Pulse oximetry video
Today we have posted a video on the homepage that was in the news in 2012. Sadly pulse oximetry is still not provided as a matter of course at all hospitals. So we are still campaigning for pulse oximetry. Find out more about the campaign here.
18/12/17 - CHF’s congenital heart disease (CHD) support networks
A challenge shared is a challenge halved. CHF offers congenital heart disease (CHD) awareness and support together with our partner groups. In addition to accessing CHF’s CHD information sheets, parents can join our social media platforms and Facebook groups to share insights and advice about caring for a heart child and their siblings. Find out […]
12/12/17 - Launch of organ donation consultation in England
The Government has launched a consultation into organ donation in England which will continue until 06 March 2018. The aim of the consultation is to establish what more could be done in England to ensure that public support for organ donation is reflected both within the legal system and in the NHS. And that more […]
