Feb 08th 2023 - CHF are recruiting for three new steering groups

Help CHF and children with heart conditions nationwide by sharing your experience in one of our steering groups. CHF are aiming to recruit for three new steering groups that will advise on issues relating to children with congenital or acquired heart conditions through lived and professional experience. We want to hear from: Young people with […]

Feb 02nd 2023 - On His Majesty’s Congenital Heart Service

As part of CHF’s mission to ensure that those affected by congenital heart conditions, and childhood acquired heart conditions, are recognised, supported and have the same opportunities as everyone else, CHF’s Chair and Vice-Chair of Trustees have engaged with the British Cardiovascular Society for many years. Working with other patients, and ably supported by others […]

Dec 12nd 2022 - Important research into the outcomes of heart surgery published

The Children’s Heart Federation (CHF) is excited to report on the findings of important research which highlights improving outcomes of heart surgery, and how congenital heart disease impacts on mental health as future priorities for the care and well-being of people with congenital heart disease (CHD). A team of UK patients, parents and healthcare professionals […]

Dec 06th 2022 - Strep A infection guidance

Update The BCCA has issued the following guidance. Dr Abbas Khushnood, Consultant Paediatric Cardiologist has also given CHF the following guidance for parents. “GAS infections are on the rise, and are certainly becoming a cause of concern for many. GAS being a bacterial infection, the risk for most children with heart conditions is similar to the […]

Dec 05th 2022 - Help us give you the information you need


Oct 12nd 2022 - Event for parents and carers of children with heart conditions – Have your say!

We are planning in person activities for children with heart conditions and invite families and carers to join the CHF team for a focus group discussion. This will be a great opportunity to meet one another, share experiences and concerns as a group, and to help us ensure CHF continues to meet needs and concerns […]

Sep 09th 2022 - Her Majesty Queen Elizabeth II 1926 – 2022

Our deepest condolences are with the Royal family as we remember Her Majesty’s lifetime of service with heartfelt gratitude and remain inspired by her commitment to charity At this time of public mourning we reflect on The Queen’s reign across the country, the UK and the Commonwealth and her awareness that the “impact of thousands […]

Aug 09th 2022 - New survey from CHF – Individual Healthcare Plans

We’d like to know more about home/school communication and how it works for children with heart conditions, their parents and teachers. Please complete the survey and let us know your experiences so we can provide further help and information.

Aug 01st 2022 - Our heartfelt thanks to Anne Keatley-Clarke upon her retirement after 17 years at the CHF helm

After spending 17 years dedicated to the Children’s Heart Federation and children with congenital or acquired heart conditions our Chief Executive Officer Anne Keatley-Clarke is retiring and will be enjoying some much-earned time with her family and friends. CHF has benefitted from Anne’s expertise and determination over the last 17 years and has played a […]

Jun 22nd 2022 - NCHDA summary report

This important publication is of interest to anyone concerned about children with congenital heart disease. The National Congenital Heart Disease Audit collects and analyses data from all congenital cardiac centres that undertook surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2018 to 2021. The complete summary report […]

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