News
26/07/19 - Tell your experience of hospital experiences to help improve services
Complete this survey to tell of your experiences of hospital appoinments. These reports will provide a valuable tool in enabling centres to better understand and respond to patients’ and parent/carers’ experience of care.
16/07/19 - Pulse oximetry survey
Support the campaign for pulse oximetry by completing this simple survey created by fellow heart charity Tiny Tickers.
10/07/19 - Comment for The Lancet on pulse oximetry screening
Professor Andrew Ewer and colleagues make the case for all babies in the UK to be screened for heart defects at birth. CHF continues to support this campaign. Please make your voice heard by responding to the public consultation.
01/07/19 - Molly Monday – how to order a Molly’s Dolly
Often people contact us confused as to how to pay for a Molly’s Dolly and ensure that it receives the correct scarring. There are two parts to the procedure. Order the doll from the shop, you can choose the doll you would like and can pay for it there. There is no way at this […]
Jun 26th 2019 - Pulse oximetry – your chance to voice your opinion
The UK’s National Screening Committee has been considering routine pulse oximetry screening for critical heart defects in newborn babies for a number of years. A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A […]
23/05/19 - Public consultation – have your say. Deadline 9 August 2019
A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A public consultation is now being held on whether the evidence presented supports the decision. This is your chance to tell your story […]
20/05/19 - CHF’s congenital heart disease (CHD) information service
CHF’s congenital heart disease (CHD) information service offers resources focusing on heart conditions as well as a wide variety of information sheets on all aspects of caring for a heart child. These include: planning holidays as a family hardship funds sourcing insurance companies specialising in children with a health condition. Further information: http://www.chfed.org.uk/how-we-help/information-service/
15/05/19 - What we do and how we help
That’s it really, we’ve produced a new document explaining what CHF does and how we help. You can download it here.
14/05/19 - Let us know your experiences of pulse oximetry testing
or lack of it. CHF is joining with other charities in campaigning for pulse oximetry testing on all new born babies. We’d like to hear from you if: Your child had a heart defect detected by a pulse oximeter. or If your child was not offered a test and a heart condition was missed as […]
13/05/19 - Search and spend to help CHF
We’re excited to announce Savoo Search, Save and Raise as our new fundraising partner, and we’d like to introduce you to this innovative way of donating. Simply use Savoo Search as your default search engine (the same way as you would your current search engine) and Savoo will donate 1p for every search. If you’re […]
