News
02/04/13 - CHF Followup Comment on Paediatric Cardiac Surgery at the Leeds Children’s Hospital
The news regarding the suspension of surgical services at Leeds is very worrying especially to the parents and children who are due to have surgery in the next few weeks. We understand that all the families affected are being contacted individually by the Trust and we hope that by now that has happened – although […]
28/03/13 - CHF Comment on Paediatric Cardiac Surgery at the Leeds Children’s Hospital
For immediate release 28th March 2013 Children’s Heart Federation is deeply saddened by the announcement that paediatric heart surgery is being suspended at Leeds Children Hospital. Our thoughts are with the heart children and their families who have not received the quality of treatment they needed and deserved. We hope that the suspension of […]
28/03/13 - Statement – Safe and Sustainable High Court Decision of 27/03/2013
Yesterday the Court recognised the need for the NHS to continue its plan to improve services for children with congenital heart disease in order to ensure that services are safe and sustainable in the future, however the judge did rule that one part of the process was ‘unfair’. While CHF acknowledge the Court’s decision we […]
25/03/13 - Statement by Leeds Teaching Hospitals NHS Trust – Paediatric Cardiac Surgeon
We received this afternoon a statement from Leeds Children’s Hospital which we have reproduced in full below. CHF notes that there are concerns about the treatment of patients with congenital heart disease and that the Trust is taking action. The Trust has asked us to make clear, that this action is not about adverse mortality or morbidity figures, however we have […]
11/03/13 - April 10th 2013 – Day out at London’s o2 Arena
Are you aged 13-17? Join us for fun at London’s famous O2 arena with the British Music Experience and a delicious lunch. Meet other teenagers with heart conditions, and hang out with our friendly team. This event is open to siblings and friends as well. We’d love you to join us, if you’re interested complete […]
07/03/13 - Safe & Sustainable – CHF Comment re: Judicial Review Judgement 7/3/2013
We are disappointed that this decision will result in further delays to the establishment of the new children’s heart care network, adding to the considerable anxiety that some families of children with a heart problem have been living under for many months now. Uncertainty about the final configuration of surgical and cardiology centres is now […]
27/02/13 - Worcester Standard – Mum’s plea for screening tests on newborns
A MUM of two whose daughter is facing open heart surgery has urged health chiefs to introduce a potentially life-saving screening test on all newborn babies. Joanna Dobson, from Warndon Villages, is pushing for the Pulse Oximetry test – which measures oxygen levels in the blood – to become a standard procedure in delivery suites […]
25/02/13 - Heart News February 2013
Download the latest issue of Heart News for February 2013 here
19/02/13 - Medical News Today – MPs, clinicians and patients are uniting to drive change for patients on long-term warfarin
A simple self-monitoring test could reduce the risk of stroke by half in thousands of people who currently take warfarin to prevent blood clots. Better access to self-monitoring of international normalized ratio (INR) levels, which measures how long it takes blood to form a clot, could also lower mortality rates by nearly two fifths,[1] reduce the number of complications […]
15/02/13 - Research Request – Parents wanted to help design medical research
Are you a parent or carer of a child with a long-term medical condition or disability who has recently been ill with flu? Would you like to help design medical research? If your child: Is aged 6 months to 12 years Has recently been ill with a flu-like illness Has a long-term health […]
