Jun 13rd 2010 - Ryan’s Story
Getting Ryan into nursery was really hard. He was born with Truncus Arteriosus, and had to have two valves put in his heart. We all got over it alright – of course we were upset to start with, but once he’d had his second operation to put a valve in to replace the leaking one […]
May 13rd 2010 - Emma’s Story
Fifteen years ago, I was expecting my second child and went along for a scan at about 22 weeks. I remember that the echo machine was new, and being demonstrated to some pupil midwives – I was quite happy to show off my unborn infant, but it was irritating that I couldn’t see the screen. […]
01/05/10 - Children’s Cardiac Services News Issue 3
Third issue of Children’s Cardiac Surgery Services News. This newsletter aims to provide you with the latest update on the journey towards providing the best possible care for children and young people with heart conditions. Surgery_Services_News_03_Spring_2010
26/04/10 - Be part of the ‘Big Surprise’ in Children’s Heart Week
For immediate release 26 April 2010 Children’s Heart Federation, a group of charities working to improve the lives of children with a heart condition, invite local people to be part of the ‘Big Surprise’ during Children’s Heart Week, 8-16 May, by holding a ‘Teddy Bear’s Picnic’ or ‘Bring a Bear to Work’ day to […]
26/04/10 - ‘Big Surprise’ during Children’s Heart Week
Children’s Heart Federation, a group of charities working to improve the lives of children with a heart condition, invite local people to be part of the ‘Big Surprise’ during Children’s Heart Week, 8-16 May, by holding a ‘Teddy Bear’s Picnic’ or ‘Bring a Bear to Work’ day to raise funds and awareness. While Election Fever […]
Apr 18th 2010 - Hugo’s Diary
by Claire Reece. Claire Reece documents her experiences of caring for her son Hugo James, who was born with Tetralogy of Fallot. 18/04/2010 Hugo was awake at his usual time of 5.20am, he has been in a very chatty mood but John and I are knackered!! He has been really good today and a […]
01/04/10 - The Need for Change (April 2010)
A document produced by the NHS. Safe, sustainable and world class. Not ordinary, OK or just good enough. Children and young people who need heart surgery must have excellent care. The_Need_for_Change
01/03/10 - The Telegraph – Ministers ignored safety warnings for years over children’s heart surgery
Ministers repeatedly ignored warnings about the safety of Britain’s child heart surgery units, it can be revealed. By Laura Donnelly, Health Correspondent 9:00PM GMT 06 Mar 2010 In 2001, a public inquiry into the deaths of dozens of babies at Bristol Royal Infirmary said cardiac units should be barred from carrying out paediatric surgery unless they met safety […]
08/01/10 - CHF – Co-location of Adult Surgical/Specialist Centres opinion.
The National Congenital Heart Patient Charities Co‐location of Adult Surgical/Specialist Centres January 2010 Congenital Heart Group Sur-Spec Centre Opinion v5 – FINAL
15/11/09 - The Children’s Heart Federation response to consultation on Draft service specification standards for children’s heart surgery services
Response to: Children’s heart surgery centres in England – Draft service specification standards You will have already received comments from several of CHF Member Groups including Tiny Tickers, HeartLine, ECHO and Little Heart Matters and so we will not repeat the detail of their comments. Most parents welcome the development of the standards, and the […]
