We are part of a worldwide voluntary community helping boys and families affected by Barth syndrome and working towards a cure.

We provide up to date information to families and medical professionals.

We provide a caring community for families and a means of being able to communicate with each other via a private e-mail forum

We also organise specialised Barth clinics, conferences and fund research.

E-mail: info@barthsyndrome.org.uk

Website: www.barthsyndrome.org.uk

 

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