Your Stories

Your Stories

  Welcome to the Children’s Heart Federation Personal Stories page.  Here you can keep up to date with stories involving the stars who support CHF and the families that use our services. Please be advised that some case studies may touch on very sensitive issues and express views that may not necessarily be shared by other parents or by CHF, nevertheless we value comments and thank everyone willing to share for their honesty. If you'd like to tell us your story contact info@chfed.org.uk 

Jun 13rd 2010 - Daisy’s Story

We lost our little girl when she was just over a year old. When we discovered she had a heart problem, we thought it was the end of the world. Through our support group we met two other families whose children had been born with Truncus Arteriosus and are now fine. So when Daisy had […]

Jun 13rd 2010 - Ryan’s Story

Getting Ryan into nursery was really hard. He was born with Truncus Arteriosus, and had to have two valves put in his heart. We all got over it alright – of course we were upset to start with, but once he’d had his second operation to put a valve in to replace the leaking one […]

May 13rd 2010 - Emma’s Story

Fifteen years ago, I was expecting my second child and went along for a scan at about 22 weeks. I remember that the echo machine was new, and being demonstrated to some pupil midwives – I was quite happy to show off my unborn infant, but it was irritating that I couldn’t see the screen. […]

Apr 18th 2010 - Hugo’s Diary

by Claire Reece. Claire Reece documents her experiences of caring for her son Hugo James, who was born with Tetralogy of Fallot.   18/04/2010 Hugo was awake at his usual time of 5.20am, he has been in a very chatty mood but John and I are knackered!! He has been really good today and a […]

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